Dementia & Aged Care Advocate: now also working as an accidental activist.
Health Consumers Alliance of SA Inc: Older Persons Clinical Network Steering Committee, Consumer Advocate
Urban Myth Drama Group and ECH: The Visitors, a play about Younger Onset Dementia, Patron
Bachelor of Arts (Honours), working on an artefact and exegesis on dementia and advocacy.
Alzheimer’s Australia, Consumer advocate:
- National Consumer Advisory Committee (NCAC)
- Consumer Dementia Research Network
- NCAC Younger Onset Dementia subgroup
- NCAC End of Life subgroup
Domiciliary Care SA: training DVD, Kate’s story, a production funded by the state government of SA for
training of staff within the department and Domiciliary Care SA
National Disability Services SA: Consumer advocate, various projects including NDIS
Alzheimer’s Australia SA, Consumers Alliance SA: Committee member (2012)
Education Resource Pack for Senior schools: as part of the YEP program from my Adelaide Fringe event, My Unseen Disappearing World.
Adelaide Fringe 2012 performance, My Unseen Disappearing World: see write ups; ADV16FEB12ST047 and ADV28FEB12ST034.
Education Pack for the Radio play version of the play Also A Mirror sponsored by Radio National and ECH Inc. and Urban Myth Theatre of Youth.
After Suicide: Help for the bereaved, written by Dr Sheila Clark, in collaboration with people bereaved through suicide. A second edition is planned, that I am also involved with.
Educational Documentary on living with Dementia, an initiative of Domiciliary Care SA, featuring my personal story. Launch date 4 September 2012.
Participant in The Good The Bad The Brilliantproject funded through the Department of Health and Ageing’s Dementia Community Support Grants. The project was about capturing the stories of people living with dementia and their carers looking at their strategies in how they cope enabling the person they care for to stay at home, for as long as possible, with the aim of this being until the end. The stories gained will form presentations at conferences and other forums and published in a book. See the completed booklet available to download here or via Resthaven Inc. or as a PDF here The Good The Bad and The Brilliant_Resthaven Inc
Stronger Communities Brighter Futures project steering committee, Resthaven Inc. and Uniting Care Wesley.
Training I have attended and reviewed 2010-12, and projects they relate to:
‘Understanding the vulnerabilities of older people’: relates to all of Resthaven’s HACC Innovative Projects: ‘Stronger Communities Brighter Futures’, ‘Consumers Directing Consumer Directed Care’ and Headstart to Independence’.
‘Asset Based Community Development’: ‘Stronger Communities Brighter Futures’
‘Valued Social Roles’: ‘Stronger Communities Brighter Futures’
‘Importance of Relationships and Social Connection’: ‘Stronger Communities Brighter Futures’
‘Consumer Directed Care -Understanding Control’: ‘Consumers Directing Consumer Directed Care’.
100 Leaders Project, a Julia Farr Group initiative where 100 stories of people living with disabilities is being displayed on a website, soon to be online, that I have contributed to.
NaNoWriMo November 2011, the National Novel Writing Challenge of writing 50,000 words in 30 days!
Here’s another project, if you know of anyone interested in helping. I blogged about my dad’s descent into Alzheimer’s. . . and now I’m writing the book based on those entries.
http://www.usaprojects.org/project/the_best_hell_ever_be
Good luck with your project. Maybe contact the editors of other books already published about dementia?