The act of one person with dementia has become the act of many around the world, now causing such a united ripple effect for change there should be no going back. Of course, there will always be the case of two steps forward, and one backwards occasionally, but as there are now so many people without dementia … Continue reading »
Tagged with dementia …
Dementia and aluminium
There have been a number of emails flying around for some time regarding the risk of aluminium and dementia. Here is the latest on the topic. In terms of aluminium and dementia risk, very high levels of aluminium in the brain are toxic and can cause cognitive impairment, but the evidence is now fairly conclusively … Continue reading »
Silence
Silence shadows me, like a soft cloud of hope. It transports me through my wildest dreams, takes me to places unheard of, new destinations; transports me along exciting roads, with wild aspirations. The golden rays of ideas blossoming inside my brain, at the centre of my heart, the core of my being. List upon list upon list of things to do, … Continue reading »
Saturday poem
Yesterday A week full of head spins On Monday a visit to the neurologist The results of the latest SPECT scan and the neuropsychology tests… Bad news The dementia has progressed clinically My frontal lobes are now involved Yet still I am not presenting as badly as the clinical picture indicates… Good news I wonder what this … Continue reading »
YOD in the Netherlands, by Keith Oliver
Christian Bakker is the Program Manager, Florence Centre for Specialized Care in Young Onset Dementia and Healthcare psychologist, Department of Primary Care and Community Care, Centre for Family Medicine, Geriatric and Public Health, Radboud University Nijmegen. A few weeks ago I heard him speak about services developed in The Netherlands to support people living with Younger … Continue reading »
Dementia and human rights
Since being diagnosed with dementia and joining the global campaign by people with dementia to help improve things such as person centred care, and advocating for what are the most basic of human rights for PWD, it fascinates me we still have so far to go in achieving this. Why are people with dementia having to fight so hard to be … Continue reading »
Head-spin
Today’s blog is late, and is all about me… me… me, and my dear husband and children too of course. I should have posted something before I went to see my neurologist Dr Casse at lunch time, but as I slept in I didn’t have time. I have seen Dr Casse a few times since … Continue reading »
Loneliness, dementia and dying
Today is Day 28 of my National Poem Writing Month challenge, and I have managed to write a haiku each day, often using an image to spark my imagination. Todays poem is called Alone and has me thinking more about loneliness, dementia and dying. I’m not so sure the loneliness is any worse than when you are facing … Continue reading »
Saturdays poem
My ability to continue to write a blog every day is deteriorating, and so it seemed a sensible idea to set out a plan to ensure I can continue blogging in some way because the value of doing it is significant. As of today, Saturdays are to become my poetry day and I have written … Continue reading »
Dementia as a disAbility
Treating symptoms in the early stages of dementia, as the gateway to supporting disabilities, not managing them in ways that restrict and hinder, and managing emotional changes with counselling and positive engagement, rather than treating the symptoms with drugs, have become paramount to my well being and perceived longevity. If the symptoms of dementia were … Continue reading »
A space for Dementia liberation
lib·er·a·tion (l b -r sh n). n. 1. The act of liberating or the state of being liberated. 2. The act or process of trying to achieve equal rights and status. My computer and internet access are more important to me than just staying connected. This connectedness helps to make up for the lost friendships, the loss … Continue reading »
Last day in Taipei
The Memory Walk yesterday hosted by Alzheimer’s Taiwan was nothing short of spectacular. This picture is of some of the Aussies there, including our CEO, Glenn Rees, and Maree McCabe, the CEO of Alzheimer’s Victoria. There were over 4000 people from many countries around the world. One chap representing Hungary, two delightful girls representing Prague, and … Continue reading »
Kuala Lumpur
We’re in Kuala Lumpur, rested and enjoying two days of recreation and inspiration. It is a busy city, and the Petronas twin towers eerily remind me of the twin towers at The World Trade Centre, but more beautiful. The Petronas Towers in KL were the tallest in the world from 1998 to 2004, and the Burj Khalifa … Continue reading »
Early-Onset Alzheimer’s: One Couple’s Story
Watch this video, Early-Onset Alzheimer’s: One Couple’s Story brought to my attention by Jami L.Hede, M.S., CCC/SLP. Thanks again Jami. It has really helped me out too, as the old brain is not firing too well today either, and I couldn’t even work out to re-blog! She made a very important point about yet another disaster waiting … Continue reading »
Sunday humour…
I love this picture, and the name of the food stall… these boys are hardly fat!! We’re in Adelaide airport waiting for our flight to Kuala Lumpur where we have two whole days to enjoy the sights. Mostly though, I’m really looking forward to the food!! In fact I’ve been drooling ever since we booked … Continue reading »
