A courageous woman from Canada who lives with the diagnosis of a younger onset dementia wrote in a beautiful story titled The Red Cardinal; ‘I am getting off the couch and I am off to seize the day for I can place no trust in tomorrow.’ Mary Beth Wighton © 2013 It seems none of … Continue reading »
Tagged with Younger Onset Dementia …
Yolanda’s story
Yolanda’s story was first posted on Global Dementia Voices, October 11, 2012 by Kate Swaffer. I felt it important to highlight the stories from that blog here, as it simply didn’t grow wings, and the stories of people with dementia, or illness leading to symptoms of dementia are important in teaching us all to better … Continue reading »
The need for change in dementia care and services
Today I presented at a forum, Younger Onset Dementia: A time for change, and my presentation was titled ‘The unique challenges of younger onset dementia’. Sometimes when I suggest things might need to change, there can be a backlash, but with the title of the forum being what it was, I decided I would be among friends and … Continue reading »
Dementia myths
Today I wanted to reblog an article by Jami L.Hede, M.S., CCC/SLP Dementia Myths Debunked from her blog Exploring Dementia. There are still so many myths out there, and I regularly have staff who work in aged and dementia care ask me Is Alzheimer’s dementia, which was why I wrote that article a while ago. … Continue reading »
The Dementia Dialogue
The Dementia Dialogue Two women discuss the disease, it’s impact on their lives, and share insights on ways to minimize the impact of this diagnosis. Through this conversation, they hope to open up the doors to a deeper understanding of their deeply personal dementia journeys. Kate Swaffer: Diagnosed (and ‘living’) with Younger Onset Dementia Kay Bransford: Assisting … Continue reading »
Speaking up on younger onset dementia
Today’s blog is a bit of a lazy one, an article Speakup on younger onset dementia from DPS News which I have copied in full to save you the trouble of heading off to another website. Quite a few of the people who read this blog mention they find it a bit tedious having to link … Continue reading »
Investing in dementia
Now that the Australian government have recognised dementia as a National Health Priority, we will all be watching and listening carefully to see how this decision translates into change, reform and improvements in research, diagnosis, treatment, service provision and care for people diagnosed with dementia and their carers (BUBS). As this historic decision has been … Continue reading »
Identity, isolation and dementia
People with dementia face an identity crisis – who am I – who will I become? One major fear is the loss of self associated with dementia, and we face an existential crisis of identity. Our sense of self is shattered with this new label of dementia. Who am I, if I can no longer … Continue reading »
Seeds for change
In the process of finding meaning after the diagnosis of dementia, I have learnt more about patience and faith in myself and others. It has been important to believe that no matter how small the changes seem, from one small seed can grow enormous oak trees. I watched a wonderful short movie many years ago … Continue reading »
Diaries and travel logs
Since starting this blog and have started writing daily, it seems I simply cannot stop, and my personal writing goals are growing, and my days are mostly spent with my trust little pc. The words that spring forth are not often academic or even very intellectual, but I try for honesty and openness. Occasionally on … Continue reading »
Younger onset dementia and Aged Care Accreditation Standards
I am a 53 years old female. There is NO age appropriate residential facility or age appropriate respite available for me in the state in which I live. If I need to enter an aged care facility, I consider the site will be breaking no less than ten (10) of the Australian Aged Care Accreditation Standards, because … Continue reading »
