The life of an advocate can definitely be rewarding, but it can also be very challenging. Along my own roller coaster ride of living with dementia and public advocacy, I have met a lot of wonderful people, as well as felt a lot of frustration. I am though, very happy not to be walking alone any more, including when I want to scream! See this ‘encouraging’ email I received a while ago:“When I read shit like this, I want to scream:In lieu of screaming, I’m sending it to you LOLSeriously, the IPA need a complete overhaul. Not a grease and oil, but new wheels completely.”
It is great to have a buddy who occasionally also wants to scream!
Note: IPA stands for International Psychiatry Association, and we had been discussing the urgency to ban the term Behavioural and Psychological Symptoms of Dementia (BPSD).
Pingback: We still need to Ban BPSD |
Pingback: Rosa Parkes: 1 December 1955 |
Pingback: In The Blogs – April 2019 – When The Fog Lifts
can i please join this club?
LikeLike
You’re in! No joining fee either! X
LikeLike
Scream away. Sometimes it helps.
I read the IPA article closely and decided that it definitely muddies the waters. Parts seems OK, parts set off my “alarm,” and parts caused me to think, HELL NO! Sometimes by so tightly defining something, it causes the practitioners to look for the label rather than at the person or for the cause of the behavior. Also, why parse it out for Cognitive Impairments when they also say it occurs under so many other conditions.
LikeLike
Exactly … I’m pleased to report this term is under a serious review in Australia x
LikeLike
ARRRRRRRGGGGGGGGHHHHHHHH!!!!!
Seriously? These people are fucking nuts.
LikeLike
lol
LikeLiked by 1 person
“They need their heads read,” as Mom would have said! Absolutely UNBELIEVABLE. SMH.
LikeLike
Tippers as my friend Jerry says!!!
LikeLiked by 1 person
trouble is they are the ones that influence these classifications – makes you wonder doesn’t it!!!!!
LikeLiked by 1 person
It most certainly does!
LikeLiked by 1 person
I can’t read the whole article (unable to concentrate so long), but I believe, and my training backs it up that challenging behaviour is solely due to an unmet need or desire and the person is trying to communicate in the only way possible for them.
LikeLiked by 1 person
It’s sometimes an unmet need, very occasionally due to the pathology of dementia, and more often a normal human response… IMO at this point of my learnings
LikeLiked by 2 people
I believe I am about to fit into one of these categories when I say what I really think.
2. demonstrate Verbal aggression (e.g. yelling, speaking in an excessively loud voice, using profanity, screaming, shouting).
What planet are these people on or maybe a better question what planet can we send them too???
LikeLiked by 1 person
Welcome to the club ness!! X
LikeLiked by 1 person
OMG. And this claptrap was arrived at by a bunch of individuals’ thoughts backed up by the agreement of a final 350 professionals of a group of 6,000 who had been contacted. Disgusted! And this is what passes for evidence based professional approach these days!
LikeLiked by 1 person
Welcome to the now global ‘Screaming Club’ Julie!!! X
LikeLiked by 1 person