The life of an advocate can definitely be rewarding, but it can also be very challenging. Along my own roller coaster ride of living with dementia and public advocacy, I have met a lot of wonderful people, as well as felt a lot of frustration. I am though, very happy not to be walking alone any more, including when I want to scream! See this ‘encouraging’ email I received a while ago:
“When I read shit like this, I want to scream:In lieu of screaming, I’m sending it to you LOLSeriously, the IPA need a complete overhaul. Not a grease and oil, but new wheels completely.”
It is great to have a buddy who occasionally also wants to scream!
Note: IPA stands for International Psychiatry Association, and we had been discussing the urgency to ban the term Behavioural and Psychological Symptoms of Dementia (BPSD).