The following article which is about a 5 year research project is truly terrifying, and only confirms my committment towards the need to Rethink Dementia and ban BPSD. It is thanks to Tina Minkowitz who is an attorney and psychiatric survivor in New York, and founded the Center for the Human Rights of Users and Survivors of Psychiatry, that I have seen it. Like those with mental illness who are forced to have ECT or forced chemical treatments, I find this abhorrent.
In the article, Pine Rest to receive $1.3M for participation in National Institute on Aging study, it says:
Pine Rest Christian Mental Health Services will receive $1.3 million for its participation in a five-year study sponsored by the National Institute on Aging which will look at the use of electroconvulsive therapy, or ECT, to treat severe agitation and aggression in people with Alzheimer’s disease.
Instead of reviewing current dementia care practice, this study has been approved to ‘fry the brains’ of people with dementia; in reality, it is being done without their informed consent. In my opinion, no one has the right to consent to ECT for another person, in my opinion, regardless of if they have legal power of guardianship. Surely this is killing people, and worsening their cognitive capacity, and should not be allowed. In this article, Adverse effects of Electro convulsive therapy, even though is claims ECT is useful for people with mental illness (which I personally would dispute) it states:
ECT has also been associated with a variety of transient impairments in cognitive performance during and following the treatment. The side effects, often subjectively reported by the patients, include deficits in orientation, short term memory function, attention, speech fluency, and executive functions lasting from hours to perhaps months in a number of cases.
I felt physically SICK reading about it.
Come on Warriors, we need to group together again, to get this campaign back on track.
ECT is surely just another form of RESTRAINT?????
The increasing numbers of others who agree include academics, dementia professionals, people with dementia and even a few care partners who have been positive about, or even joined this ‘campaign’.
This list of Rethinking Dementia warriors started with Dr Al Power, Daniela Greenwood, Susan Macaulay, Howard Gordon, Liz Lester, Leah Bisiani, Sonya Barsness, and now, many others have shown support, including people such as Denise Edwards. The list has grown considerably since September 1, 2018, and when I can find it (1), I will add the others here as well.
Ps. If you advised us you wanted to be part of this group, feel free to let me know here again, as my filing system has moved into the more advanced stages of dementia.