My site kateswaffer.com is committed to meaningful dialogue with a wide range of stakeholders about the critical issues impacting a person living with a diagnosis of dementia and their families and close friends, academics and health care professionals, as we ll as civil society.

Please note: Opinions or articles and comments on this website in no way reflect the perspectives of Dementia Alliance International, or its members.

I wish to acknowledge the traditional owners of country throughout Australia, and their continuing connection to land, sea and community. I pay my respects to them, their cultures, and to elders past and present and emerging.

No Medical Advice: Information and other content included on this website is for general informational and educational purposes only and is not meant to be a substitute for the advice provided by a professional health care provider. You may not use or rely on any information contained on the Site for diagnosing a health or medical problem or disease. Comments made by others, and approved for posting on kateswaffer.com are opinions of the authors, and do not represent the opinions of Kate Swaffer.

Always consult a professional health care provider regarding any health or medical condition or treatment. Do not delay or disregard seeking professional medical advice on account of something you have read or listened to on http://www.kateswaffer.com

Kate Swaffer © 2019 | Author, Activist, Academic, Keynote Speaker | All rights reserved. Subject to the Copyright Act 1968, no part of this online website may be reproduced, stored in a retrieval system, or transmitted in any form, or by any means, electronic, mechanical, photocopying, printed, recording or otherwise, without the prior written permission of the author.

170 thoughts on “Home

  1. Dear Kate Swaffer,
    I write on behalf of my remarkable sister Catherine (Verner) – who lives on the west coast of Scotland, UK.
    For the past 10 years, she has been a care giver at home to our dear mother who suffered from combined Alzheimer’s Disease / Vascular Dementia, until she passed away peacefully in October 2020.
    Catherine was also awarded a Master’s degree in Dementia Studies from Stirling University, and retains contact with the University’s center of dementia research.
    Today, her passion is to reach out and help other family caregivers in a situation that she found herself in many years ago (primarily via her website).
    The website, is a combination of free resources plus a growing series of informative and practical books for sale, all aimed at supporting families living at home in the community.
    It can be viewed here.


    Catherine writes regular Newsletters, which are informative and in-depth, topical and insightful, and I was wondering if she could become a free contributor on your informative and touching website.
    I believe her articles would appeal to your readers, who could benefit directly from her combined theoretical and practical expertise.
    Catherine would also be open to researching and writing about topics that you think might be relevant.
    I look forward to hearing from you soon.

    Kind regards,
    James (Turley)

    ‘Dear Catherine,
    You looked after your mother so well, which should make you proud.
    Dr. Laverty (Family Doctor – UK NHS)’


  2. Hi Kate,
    I’m from Singapore and have been treating younger people with Parkinson’s and dementia especially below the age of 68. In my humble opinion and the caregivers of the people I work with, their condition either improved or deterioration curtailed. I have to also admit that the measurement of result is home-designed by myself hence I was thinking if you have or can kindly advise me, the more widely accepted tests format which I maybe can use for better reference?

    I started learning anatomy but a few years ago I decided to learn TCM and I am using “bio-energy electro therapy” to stimulate neurons. Look forward to your email. Thank you.

    Liked by 1 person

    • Hello Michael, thank you for your comment and questions. I’m unsure if I know how to answer your question. I’ll do my best to remember to email you. Best wishes, Kate


  3. Hi Kate,

    I am a graduate student at the New Jersey Institute of technology. I am working on a mobile application to assist people [diagnosed with] Alzheimer’s [or another dementia]. I was wondering if I can connect with you & have some insights on how can I improve the hardships which they face in a typical day. Your suggestions will be very valuable to me.

    Liked by 2 people

  4. Hi Kate,
    I’m another one who is doing the MOOC through the University of Tas “understanding dementia”
    I just wanted to let you know that I find you inspiring and to thankyou for not listening to your doctors to disengage.
    All the best to you your husband and kids


  5. Hi Kate.
    I have been accepted into UTas’ Bach Dementia Care, but I’m just doing their MOOC Understanding Dementia this semester, hence following the link to your blog. I haven’t received a notification e-mail in regards to subscribing to your blog and was wondering if this would occur? As I’d be very interested in your information.
    Kind regards


    • Hi Joshua, Thanks for connecting. I tried to add you, but the message came up that you had already signed up. Let me know ifyou still have not received the email that asks you to confirm you want to follow my blog. And congrats re being accepted into the BDC course, I really hope you enjoy it.


  6. Dear Kate,

    I just watched your video talk ‘The Power of Language’ on youtube and wanted to say thank you, it was supremely interesting and enlightening and a wealth of critically important reflections which I look forward to taking into my conversations with others.

    All the best for your 2018 endeavours,



  7. Dear Kate.
    I have just read the most awful attack on you by a carer/ partner of a person living with dementia on Facebook. I met this woman at the Symposium of Dementia and Love in Ballarat one year ago and found her to be volatile and totally self serving, leaving her partner to the care other’s who did not even know her. Following her comments on Facebook since then, I find them to be hateful vitriolic attacks on people who seem trying to help her and her partner. Sadly she has now included you in one of these many attacks which has finally forced me to block her. Please don’t take any of her opinions on board. I think that you are AWESOME! The person that you are and the work that you do are valued by so many both in Australia and Internationally. Please stay strong in the face of thus adversity. You have my complete support. My thoughts and prayers are with you.
    Much love


    • Thank you for sharing your experience and also for reminding me to stay strong. Much respect and love for being willing to show your support here. Today has truly been a blur… which without support I’d not get through easily. X


  8. Kate,

    I feel lost as I believe that I may have early signs of Lewy Body, and have noted, for some time, subtle changes that may be due to age, I am 63, but may relate to a disease process. I find that when I talk to my GP, who is transient as I live in a country town, he looks at each item individually rather than looking at the broad picture. I also checked the Royal Adelaide Hospital website but found no specialists in dementia or Diseases of Aging, although I am sure they must exist. I am concerned because for 3 years I was mis- diagnosed until 1990 when I was finally diagnosed and correctly treated for another disorder, despite visiting a number of doctors. Now I am concerned that the cycle is starting all over again as my symptoms are not consistent and could have other causes but finding a doctor who will see me holistically and see me now is creating significant angst.
    I realize that you are not a referral service but I needed somewhere to vent my frustrations!




    • Dear Geof,
      I’m so sorry to hear of your concerns re the possibility of Lewy Body dementia, and the equally frustrating issues (again!) with medics taking you seriously. With your permission, would it be helpful if i emailed you? Whilst your email cannot be seen publicly here, i can access it. Take care,


    • I am running into medical gaslighting. I encountered a naughty neuropsych who, after my testing, actually told me that my only real problem was that I resented my dead mother, that I needed a shrink, and that I was making up symptoms and intentionally trying to flunk the test (malingering) so I could go on Social Security Disability (I’m in the U.S.). I was speechless. I was to retest in a year, and BAM! — the novel coronavirus. Then in March, while sheltering in place, I connected with half-sisters (I’m adopted) I didn’t know I had. I learned from them that my birth father and his two sisters had all died of Alzheimer’s. I have finally determined to see only those medical experts who see dementias every day, all day, to the exclusion of all else. As a (now retired) book publisher, I note that you write extremely well and wonder if you’ve heard this one: “You write so well, it’s impossible for you to have dementia!” I hear it regularly. I wanna smack ’em in the kisser, frankly. Be well, Betsy


      • Dear Betsy, I’m so sorry to read about your terrible experience! I did laugh though at your last couple of sentences, especially about what you’d like to do to ‘their’ kisser! I know many people who would feel / have felt exactly the same! Stay safe and well too and I hope you find some good health care professionals to support you. Kx


    • Geof, i was initailly diagnosed with Early Onset dementia 3 yrs.ago and fell into a deep depression until i found a great support group in Dementia Alliance International – http://www.joindai.org
      A year ago, i started having new symptoms if Lewy Body dementia, and when i asked my local neurologist if she thought it could be Lewy, she said no.
      Ive since found out thst MANY neurogists DONT know much about Lewy Body, and MOST doctors havent even heard of it, so you may need to educate your other doctors about it….
      My recommendation to you is to educate yourself about Lewy Body dementia as much as you can, as it is one of the more complicated dementias as far as symptoms & treatment. If you havnt already, visit
      Lewy Body Dementia Association
      The next thing i offer you is to get in a support group spevlcifically for Lewy Body. There is one on Facebook that has online meetings on Monday, Wed., Thr., and Fri.
      Just go to Facebook, and type in Lewy Body dementia in the SEARCH and you will find this support group and others!
      You may also contact: Curry Whisenhunt thru Facebook, who is the founder of that support group who also has Lewy. He is wonderful, and SO HELPFUL!


  9. Hi Kate,
    You are such an incredible woman! I am so inspired and in awe just reading what you do. I am currently doing the ‘Understanding Dementia MOOC’ and came across your story & instantly clicking on the link to your blog..& finding myself here posting a comment. I have worked, as a Carer in a Dementia Unit, with high functioning residents but clearly, you just opened my eyes and understanding to a whole new dimension and approach in life in how to just get on with it. You’re a Light and definitely blessing others with it.
    God bless you!


  10. Dear Kate
    Thank you for commenting on the discussion on the British Geriatrics Society blog on Frailty https://britishgeriatricssociety.wordpress.com/2017/08/02/the-frailty-industry-too-much-too-soon/. As a geriatrician and falls prevention specialist of 20 years I have felt increasingly passionate about the role of public health in the well being of older people and feel we are crucially placed to promote interventions which will avoid or delay the onset of many conditions affecting older people, particularly in partnership with primary care. I too feel dismayed when debate and expression of views are shut down by habits seen too often in social media.
    Kind regards


    • Hi Anne,
      Sincere thanks for commenting here; it is appreciated greatly. I had heard that blog has now been deleted, but it appears not. What a shame if it had been, as open dialogue should be allowed, and is the only way we can make our world a better place, including for people who are frail (I dislike that word too), ageing or living with dementia like me.
      Best, Kate


      • Hi Kate
        Thank you for your reply. I agree on the need for open, respectful dialogue, in order to maximise contributions and minimise group think. Thankfully only the more overt personal attack on a colleague was removed, but even its temporary appearance it likely to have had a far wider effect than on its target.
        I wish you continuing success in educating us in health, dementia and manners!
        Best wishes


      • Thank you Anne… and the far wider effect, is mostly the reflection on the person who made the comment which the BGS rightly decided was so offensive they removed it.


  11. “Rainbow at the end of the Tunnel”

    HI Kate,

    I am not sure whether this is the spot to add my comment. Hope it is as I want to let you and everyone know that your book: “What the hell happened to my brain?” has really touched me tremendously. I am a health care professional working in aged care (community setting) and many of my clients have dementia. I found that most of them seem to be just given “Prescribed Disengagement” as you have mentioned and it is so depressing. I then went on to embark as many Dementia on-line courses as I could to help me understand more about dementia, so that I could find light at the tunnel for my clients living with dementia;

    Although these courses help me to understand dementia better and bring me a little bit of light at the end of the tunnel, but after reading your book I feel that I have found a “Rainbow at the end of the Tunnel”! It is SO EMPOWERING. Your book says all!! Although I have finished reading the book, your messages still resonate in my mind. You have empowered those living with dementia and you have shown to others that those living with dementia are the ones who will show us the beautiful rainbow. I strongly recommend that your book should be a text book for all those interested in finding more about dementia! The more I learn about Dementia from my on-line courses the more depressed and anxious I felt, but after reading your book I felt inspired!! Thanks Kate for sending us the “Rainbow at the end of the Tunnel”!!!

    Truly inspired,


  12. Dear Kate, I have just finished reading your book “What the hell happened to my Brain!”. I have found this very inspiring and have implemented some of your suggestions into my Dementia wing at my aged care facility. I am only one person trying to make a difference to my residents and am trying to provide them with care that is centred around them and not their disease. I agree that there is not enough support for persons living with dementia and agree that Dementia should be treated as any other debilitating disease. I believe that persons should have the opportunity and services provided to them as other people diagnosed with other diseases. If you have any advice in how I can improve the quality of life to these residents PLEASE let me know. I work as a nurse in an aged care facility and have many people with Younger Onset Dementia. I feel compassion for those people and have seen the slow decline in abilities to these people. I want to speak out about empowering people living with dementia. Thank you for the Book, I found it very helpful. Thank you for being so honest with your thoughts and feeling.


      • Kate you are an inspiration to all people living with Dementia. But not only Dementia but people living beyond any disease. I was surprised that you answered my post, being just one person in a small town in Central Queensland. I just want to make a difference to a persons life. Being ‘locked’ in an aged care facility can’t be easy, especially when a lot of our residents are from the country and have known nothing but wide open spaces where they were free to live how they wanted.


      • Thanks Sharon… as per a comment on my blog yesterday, “If everyone was engaged in meaningful activities to prevent boredom and the environment was easy to find your way around and all staff treated everyone with the respect they deserve there would be no need to lock doors as no-one would want to leave.” Keep up your great work, and stay strong in your commitment to making a difference and creating positive change for us all, regardless of how many people tell you not to bother, or that it is not possible to support us other than in locked units (jail). xx


  13. for school i have to pick someone to be the Australian of the year for 2018, and i have chosen you this is some of the criteria i have to use 1. background information 2. demonstrated excellence in there field 3.significant contribution to the Australian community and nation 4. and inspirational rolemodel for the australian community. and would appreciate if you could help fit some dot points in those section/criteria 🙂


  14. Hello Kate, I was touched by your story and your life, on how you are dealing with Dementia and I agree with you it is a disease not understood. I have my Mum 83 years of age which I believe has Dementia but I don’t know much about this Desease it’s very hard to know. She has Depression and phobias where she always sees things that are not there or believes that a person is trying to strangle her, I’ve tried getting my age care to access her or someone at Monash a health to diagnose her but it is a long waiting list, she has poor vision and that is a 2 year waiting list to be seen. I am her only son and primary carer for her but not knowing how to deal with her phobia or dementia is very hard for me. I want someone to help her straighten up her mind or speak to someone that can tell me how I can help my Mum not to have this phobia or hallucinations and if it is related to Dementia or something else ? She doesn’t speak English which adds to the problem in trying to find a specialist. She has locked her self out of the house 3 times she forget to turn the gas cook top luckily it turns itself off as a safety feature but it is still nerve wrecking for me, she puts things in the cupboard rather than the fridge etc.


  15. Hello Kate, is there any chance you might be speaking in Brisbane sometime? After doing the “Understanding Dementia” MOOC and following your blog, I have a much greater understanding of dementia, especially the emphasis you place on continuing to be involved in a positive and productive way after a diagnosis of dementia. Thank you for what you’re doing. Regards, Mary


    • Hi Mary, not this year, but I will be next year on World Alzheimer’s Day – 21 September 2017! I’ll try and remember to add the details of the event to my blog so you can register… feel free to remind me! I’m glad yo have found the MOOC helpful as well. Take care, Kate


  16. Dear Kate Swaffer
    I have been reading your book with great interest. i am editing a book on representations of dementia in literature for Routledge and i wonder if i would be imposing greatly on you to ask if you might consider offering a contribution – your own meditation on how literary works represent dementia. Your point is only too well taken, that the voices of people living with dementia are seldom heard and I have to say that this is a big deficit in my own book. It would be so fine if you could contribute a piece. The normal length is about 5500 words, but if you want to write ( or audio-record or participate in a skype interview, or whatever might suit you best) then the floor is yours, as we say in Ireland.
    I have only just come on your work and the official deadline for submissions is the end of 2016, so my apologies for such a tight time-frame. I am very happy to tell you more about the book.
    I am a senior lecturer in education in Queen’s University, Belfast. My fields ( some of them) are literature, mental health and voicing.


  17. Somedays like today, I am tired of apologizing…for misspeaking, for misunderstanding, for ending my sentence abruptly with “never mind” because I forget the words or the subject, for feeling helpless in a moment of anxiety or overwhelm, for not know who you are, for forgetting who I am…


  18. Hi Kate. I knew when I read your author’s note ending “… so perhaps, if I have been repetitive, we can simply call it dementia-friendly,” that I would find much of personal value in your book.

    I’m only a few chapters in, but I’ll go ahead and thank you now. Thank you for shining a light on what feels like a taboo subject here in the U.S. Thank you for your honesty and wit. And although my story is not exactly like yours – what you write feels familiar to me. At 67 my brain is ever so slowly betraying me. But I need no medical intervention nor do I want worried looks from friends or family. I work. I write. I stay physically strong. And I believe that rather than losing myself as my dementia progresses, I’m finding a revised version of self that I’m pretty fond of.

    My best to you, Kate Swaffer. You are a remarkable woman.


    Liked by 1 person

  19. Review of What the hell happened to my brain? Living beyond dementia; by Kate Swaffer published by Jessica Kingsley
    ISBN 9781849056083

    What The Hell Happened To My Brain? is the story about the impact on the life of a very busy woman of an “uninvited visitor”, an “unwelcome 50th birthday present” – dementia.

    The author, leading international advocate Kate Swaffer, describes her experiences. She offers her story and reflections to powerfully argue for a life beyond dementia, beyond the diagnosis of dementia, to show people “who I really am”.

    The author speaks of stolen dreams, of being cheated, of dementia as a pseudo death, of drowning under the weight of guilt and loss and of hallucinations where strangers and wild cats occasionally stalk her. Her ‘high functioning brain’ has slipped away, sometimes showing itself like a ghost. She describes her soul has being sucked out little by little and watching herself die. There are tears, lots of tears, and ‘hiraeth’, the bond for home – ”who I once was”. She misses her memory, which has become a desperately bare landscape.

    This very personal story is combined with a comprehensive reflection on the issues concerning the impact of dementia on people’s lives and of the lives of those around them: from “why me, why this, why now?” through illness, sadness and positivity, the burden of disbelief, younger onset dementia, grief, loss and guilt, myths, loneliness and stigma to family care partners, interventions, advocacy and more.

    The author rails against what she describes as Prescribed Disengagement, where people are told to go home and give up, to get their end of life affairs in order and give up work and study to ‘live’ for the time they have left. This, she argues, leads to fear and removes any sense of hope for the future. On the contrary most people with dementia live in the community with support and participate in activities they did before diagnosis. Reclaiming a pre-diagnosis life and ignoring Prescribed Disengagement is to “reinvest in life”.

    This includes regarding dementia as a disability, with better advice and services that enhance quality of life, well being, support ‘fighting for our lives’ and provide positive meaningful engagement that breaks with traditions steeped in bias, stigma and the discrimination “that isolates us”. Including dementia as a disability would mean that “many more of us would simply get on with our lives, accommodating our particular disabilities for as long as possible”.

    Explanatory lists that effectively illustrate the author’s points include the impact of younger onset dementia, the impact of delayed diagnosis, the myths and responses to them, positive response to Prescribed Disengagement, response strategies through assistive technology for disabilities caused by cognitive impairment and steps to becoming dementia friendly accessible communities.

    The author speaks warmly of her family, of the impact of her dementia on her teenage boys and her ‘her husband, who she calls her ‘Back-Up Brain’, and their corresponding support. A Back-Up Brain empowers the carer to be with or alongside the person with dementia rather than to care for them; a subtle but significant difference.

    Professionals talking about managing behavioural and psychological symptoms of dementia (BPSD) drive the author to ‘ranting distraction’. Are we to manage behaviour or improve staff education about dementia and client communication needs, she asks?

    In discussing interventions, the author outlines her own experiences as a blogger. For her, life stories and poetry based around the narrative of one’s life, are not only valuable “for us now” but has the potential to provide a detailed life history. It allows explanations of support that promote not only humanity and self evaluation but intimate sharing. Blogging has helped the author overcome many of her fears, capturing memories and a personal history file, “I forget, blog and it is always there”.

    Central to the author’s advocacy is the engagement of people with dementia who, she argues, are being left out of many of the conversations and events about them. Indeed, advocacy itself is an intervention about “owning your own life and helping someone else reclaim theirs”. For the author, who has been given the Prescribed Disengagement lecture, it is a reason to get up, a source of fulfilment.

    In closing, the author offers her own extensive activities as proof that people can live beyond the diagnosis of dementia.

    There is, of course, much more. This book is a record that needs to be read by anyone working with or associated with people with dementia and those around them.

    Phil Saunders
    Strategic Policy Engagement Consultant
    William, Robert and Grace
    Adelaide South Australia


    • Thank you for your very generous review of my book Phil… and none out there reading this, please note, Phil is looking for a new job, and I’d highly recommend you contact him (even via me here) if you are looking for someone brilliant to work in policy (Phil – correct me, or add to this, if you need to!).


  20. Dear Kate

    I write as a son of two parents both with early Alzheimer’s and as a Doctor who has been training in the field of functional and anti-aging medicine. I seek the opinion of those affected with the disease because there have been some major developments to my mind in small studies where 9/10 early Alzheimer’s and Mild Cognitive Impairment were reversed (not cured) by a Professor of Neurology using a non drug approach-he recently reported he is getting similar results in over 30 new patients. We now have to steer the muddy waters of science and ask exactly what should we do with this information? This is a very small sample but in view of the fact that until now no cases of reversal have been documented by a expert I believe it adds weight to the findings. Since it does not involve drugs I think its very unlikely further trials will go anywhere.

    Here is the link to the reversal research.. http://www.impactaging.com/papers/v6/n9/full/100690.html

    The first part is heavy science but if people read the stories and the protocols they will understand.

    Therefore I have been designing a program that can help people apply these protocols. Its not that hard but it is comprehensive and people need the help of a functional progressive doctor to help them prioritise the interventions based upon the results of a investigative work up. They also need the help of a health coach and behavior change program to motivate and support clients achieve the changes they need. Both my partner Miki and I are qualified health coaches.

    Miki and I are committed to sharing this knowledge and are holding a seminar in Manly on ,March 16th. Here is the link. http://brainmanly.eventbrite.com/

    I have spoken to the Alzheimer’s Association and am committed to monitoring all results we get with clients using these protocols for full transparency and to contribute to the wider learning.

    I look forward to you and your readers replies

    warm regards

    Dr Dave Jenkins


    • Thanks Dave, and as we have already chatted via email, I’ll not reply further here. However, the Bredesen article is one I’ve been promoting since it came out, and soon, others will stop laughing at people like you and I… who believe in healthy lifestyle, and the occasional miracle!


  21. I did hear your presentation in Gosford Leagues Club ( in August 2015) ….and you opened my eyes on many issues connected with dementia condition. After being redundant from my work, I started voluntarily work in Day Centre and study on MOOC “Understanding dementia” to be able to look after and make peoples live more comfortable and enjoyable . Thank you Kate you are remarkable lady. cheers Malgorzata (Margaret)


  22. Hi Kate
    Is there any possibility that you maybe in Brisbane on Tuesday 13th October this year. I would like to invite you to speak at the Future Planning Forum. I have had the privileged of hearing you speak twice and you truly are inspiring. I will leave my contact details- look forward to hearing from you
    Regards Ann


  23. Hello Kate,
    I was at the ADI conference in Perth a few weeks ago, and was most impressed and honoured and felt privileged to hear you speak and tell your story. Thank you so much for making me understand better what makes you tick and about challenges experienced as well as achievements recognised by being the first employee. Congratulations!!
    I was wanting to ask a favour: Firstly could I please use your poem in my UTAS essay when writing about Early Onset Alzheimer’s for Dementia Care Degree assignment, and secondly would you have access to any statistics or additional info I could use in regards to “Impact of EO on mainstream society”. (Or point me in right direction for info, please). Thank you so much Kate. Best wishes from Corry


    • Hi Corry… firstly, thanks for the generous feedback, and for joining the conversation here. What poem are you talking about? Also, FYI, Early Onset is now referred to as Younger Onset Dementia (YOD = under 65 years of age) as anyone can be in the early stages of a dementia.

      Regarding stats or information specific to YOD, I’m not sure I can direct you anywhere, other then hat usual sites such as Alzheimer’s Australia and Alzheimer’s Disease International. You can find some info at the following sites that will include current stats and infographic on dementia:
      ADI – http://www.alz.co.uk/research/G8-policy-brief go to the bottom of the page to download
      WHO – http://www.who.int/mental_health/neurology/dementia/infographic_dementia/en/

      At the WHO Ministerial Conference on Dementia, they stated there are over 47.5 million currently diagnosed with dementia, and ADI state there is a new diagnosis somewhere in the world every 4 seconds. I believe the Australian figure that is one every 6 minutes, but not 100% that is current.

      The figures in Australia are over 344,000 people diagnosed with dementia, with over 25,100 of those people with YOD, which were the stats given recently at a Parliamentary summit, but probably on their website as well.
      Anyway, hope this helps. Cheers, Kate


      • Hi Kate.
        Sorry to write this here.
        I hope you see this…
        I’m at a complete loss as to how to navigate in this page.
        How do I see your latest blog.
        I’m sorry I don’t know what to click on….
        Do I start by clicking “home” and then do something?


      • No stress Steve… I have emailed you so hope that helps. But, in case you don’t get it, if you go to the section of the website with the heading, hit the page that says BLOG, then scroll down to the latest one (which is not at the top, just to make it more confusing!)…. or you can Follow it, by adding your email to the blue FOLLOW button on the right hand side of the page. hugs to you both xox


  24. Hi Kate,

    I just want to sincerely thank you for your efforts in writing your blog and encourage you in the incredible work that you are doing. You are shedding such light on this area and are an inspiration to many.

    I am in the beginning stages of implementing a new project – Recovery Approach to Dementia Care – in regional NSW, within a community setting. The Recovery Approach builds upon Person Centred Care and some of the core principles are inclusion and social access, redefining self outside of labels, strengths based, and fostering hope. This model has been used in the mental health setting for years. I believe that the health system in Australia can improve so much in relation to dementia care, both in policy and in practice. I hope that I too may be able to impact this positively as you are also doing – time will tell!

    Again thank you, you are helping to pave the way for the future care and support of many people living with dementia.

    Kind regards,


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