Yesterday Ms. Ita Buttrose, the current Chair of the ABC in Australia, and an Ambassador and a past President of Dementia Australia gave a key note presentation at a Symposium hosted by DA. In the Q&A after her speech, she responded to one mildly defensive comment that there are ‘good aged care providers’, by saying…
CPRD / Daily Blog / Dementia / disAbility Rights / Discrimination / Living beyond dementia™ / Prescribed Disengagement ® / segregation / Stigma
Firstly, as we all face the current healthcare crisis, I acknowledge the challenging nature of these times and hope you are all safe and well. I suggest we phone our family and friends, and if that’s difficult, then consider writing a letter or sending a card. I love receiving letters and cards… I’m staying off…
CPRD / Daily Blog / Dementia / disAbility Rights / Discrimination / Human Rights / Living beyond dementia™ / love / Prescribed Disengagement ® / Stigma
Thanks to Ita Buttrose, AO, OBE, an Australian journalist, businesswoman, television personality and author, for inviting me to be interviewed on The Studio. Ita was the Australian Of The Year in 2013., and she is a true media Icon, an inspiration for all women of all ages, and a woman who I feel lucky enough…
Dementia / disAbility Rights / Discrimination / Human Rights / Living beyond dementia™ / Prescribed Disengagement ® / Stigma
It was a privilege to be interviewed on ABC Breakfast by Paul Kennedy and Ali More, on 10 January 2017 in Melbourne. Almost better than that, was a family friend Jo Sullivan, a sports journalist who works there, who surprised me by escorting me to the studio (I had forgotten he worked there!!)! This is the interview:…
Daily Blog / Dementia / Poetry
The loneliness of my grief is sometimes like my private torment, only visible to my heart and soul… I try desperately to hide my tears, to live inside my ‘denial bubble’, but every now and then the pain escapes. It is then that I realise that my eyes are filled with tears, and the indescribable sadness,…
Inspired by reading the daily post from BrainPickings The Science of How Alive You Really Are: Alan Turing, Trees, and the Wonder of Life, I have just ordered a book titled, Natural Wonders, although it is currently out of stock. Amazon say it is “a collection of literature attempts to compile many of the classic…
In an article What to Do if You Suspect a Senior Is Being Financially Abused or Exploited, by Carolyn Rosenblatt. The journalist start by saying: Some have called elder abuse “the crime of the century.” This crime can be difficult to detect and investigate, but one of the few ways to stop an elder from…
This is an important article, and the journalist has used a term in the tiele I’m almost sucared to use: The way we’ve outsourced care for our alleged “loved ones”, paying people as little as possible to do what we’re not prepared to do ourselves. We are meant to love those in our care. We are…
The appointment of Mr. Quinn as the new UN Special Rapporteur on the Rights of Persons with Disabilities is extremely positive news. Congratulation Professor Quinn. Mr. Quinn takes over the role from Ms. Catalina Devandas Aguilar who has worked tirelessly for persons with disabilities, and who has been appointed as Costa Rica’s ambassadorto the UN in Geneva.…
You are invited to register now to join DAI for their October 2020 “Meeting Of The Minds”, Webinar BAME family carers coping with caring for dementia, presented by Mohammed A. Rauf, MBE, Founder & Director Meri Yaadain CiC. Wednesday, October 28, 2020 (USA/CA/UK/EU) Thursday,October 29, 2020 (AU/NZ/Asia) Please note this is one event, set in…
NEW RELEASE: The UN OHCHR has announced the release of the International Principles and Guidelines on access to Justice for persons with disabilities, which is a practical tool to support States in designing and implementing measures to provide equal access to justice for persons with disabilities, in line with international human rights standards. The publication…
Choosing to spend time with people who are good for your mental health is essential. Yes, even if sometimes those people are related to you. Maybe it’s even more important if they are family as the emotional damage goes much deeper and is so much harder to heal. The damage and emotional harm from abusive…
Today I want to talk about our attitude, but mostly about abuse, bullying, and what I think being a strong person means. I think being strong has nothing to do with your muscles and braun, or how far you can run, or how you can work for long hours without much sleep. It is about…
You are invited to register for two important webinars being hosted by Sydney University, Associate Professor Lee-Fay Low and Professor Kate Laver on why rehabilitation for people with dementia matters, to launch their new book, Dementia Rehabilitation: Evidence-Based Interventions and Clinical Recommendations. Webinar 1 : Rights, communication, comorbidities. Webinar 2: Work, exercise, play About the…
Today is the final day of Dementia Awareness Month 2020, and it has been a marathon of sorts posting daily blogs, although it has been helpful having hundreds in my draft folder. It now takes me a long time to read, think things through, and even longer after than to write coherently. So, as I…
In my #BanBPSD for #WAM2018 blog series, I am posting a comment received after an earlier blog in this series; often it is a comments like this that motivates me to keep writing and advocating for change. My blog today is short, but hopefully makes sense. Jeff’s comments kept me awake, and in tears for…
It has been one very busy month and I have posted lots of blogs that have still got me thinking! Hopefully they have made you think too, rather than offended or upset you. My intention is to have an honest, open global conversation, about the things that really matter, not to offend. If we speak…
I’ve written many time about BPSD or ‘challenging behaviours’ as well as what I have termed BPSC-19, but the comparison may not be obvious to everyone. Hence, for day 27 of Dementia Awareness Month in 2020, I decided to list the ‘symptons’ of each here. If we check out the two lists we could be…
An article published in April 2019 Language paradigms when behaviour changes with dementia: #BanBPSD, rather ironically helps explain to me why we need to ban the contruct known as the Behavioural and Psychological Symptoms of Dementia (BPSD), and not just change the name. I’m doubtful that was the intention of the authors… Over the last…
