Moved to tears

Over the last ten years of advocacy, which have somehow turned into global activism for change for all people with dementia and our families, I’ve often turned to the late Dr Martin Luther King Jnr. and Mrs Rosa Parks for inspiration. I quote them regularly in speeches. I think of them, some weeks almost daily.…

DAI Side Event on Dementia as a disability

Originally posted by Dementia Alliance International today: Please join us online today for the DAI Side Event being hosted at the 12th Session of the Conference Of State Parties (COSP) on the Rights of Persons with Disabilities (CRPD). Dementia: The leading cause of disability. The overarching theme is of social inclusion and health, which are…

No excuses for being direct

I’m too old, and definitely past being worried if being too honest or too direct is seen as confronting or annoying. After all, just like you (sooner or later), I’m dying. To say I’m more than tired of the hidden agendas of academics and others in the dementia world, is a major understatement. Many, including…

The 20th century view of dementia continues…

Try as I might, I am currently really struggling to convince a group of global researchers on the importance of adding two simple things to a list of possible interventions following a diagnosis of dementia. It has got to the point, I feel discriminated and stigmatised by them, as most in the group generally seem…

Honouring people with dementia

Today I appeared at the last day of the dementia hearings as a witness at the Australian Royal Commission into Aged Care. I’m feeling emotionally shattered by this. Unexpectedly so. This was in honour of the 50 million people living with dementia globally and our families. I also dedicated today’s attendance at the Hearing and…

An update on Alzheimer’s Disease (AD) in the elderly

It seems that expert researchers and medical doctors have had it wrong… in fact millions of patients they diagnosed with AD, don’t in fact have it. From an article, New type of dementia identified By Michelle RobertsHealth editor, BBC News online, 30 April 2019. “There’s no doubt that many people who were previously called Alzheimer’s,…

Beyond 2020: Australian National Disability Strategy

HAVE YOUR SAY IN AUSTRALIA: Consultation on the National Disability Strategy for beyond 2020 The Commonwealth Government is consulting with people with disability about the new national disability strategy which will replace the current one that ends in 2020. It’s all about creating a more inclusive society that enables people with disability to fulfil their…