Yesterday Ms. Ita Buttrose, the current Chair of the ABC in Australia, and an Ambassador and a past President of Dementia Australia gave a key note presentation at a Symposium hosted by DA. In the Q&A after her speech, she responded to one mildly defensive comment that there are ‘good aged care providers’, by saying…
CPRD / Daily Blog / Dementia / disAbility Rights / Discrimination / Living beyond dementia™ / Prescribed Disengagement ® / segregation / Stigma
Firstly, as we all face the current healthcare crisis, I acknowledge the challenging nature of these times and hope you are all safe and well. I suggest we phone our family and friends, and if that’s difficult, then consider writing a letter or sending a card. I love receiving letters and cards… I’m staying off…
CPRD / Daily Blog / Dementia / disAbility Rights / Discrimination / Human Rights / Living beyond dementia™ / love / Prescribed Disengagement ® / Stigma
Thanks to Ita Buttrose, AO, OBE, an Australian journalist, businesswoman, television personality and author, for inviting me to be interviewed on The Studio. Ita was the Australian Of The Year in 2013., and she is a true media Icon, an inspiration for all women of all ages, and a woman who I feel lucky enough…
Dementia / disAbility Rights / Discrimination / Human Rights / Living beyond dementia™ / Prescribed Disengagement ® / Stigma
It was a privilege to be interviewed on ABC Breakfast by Paul Kennedy and Ali More, on 10 January 2017 in Melbourne. Almost better than that, was a family friend Jo Sullivan, a sports journalist who works there, who surprised me by escorting me to the studio (I had forgotten he worked there!!)! This is the interview:…
Daily Blog / Dementia / Poetry
The loneliness of my grief is sometimes like my private torment, only visible to my heart and soul… I try desperately to hide my tears, to live inside my ‘denial bubble’, but every now and then the pain escapes. It is then that I realise that my eyes are filled with tears, and the indescribable sadness,…
“Don’t give up, you still have time to reach out and start again. Accept your shadows, bury your fears, release the last. Take flight again. Do not give up this life, continue the journey, follow your dreams. Unlock time, remove the debris and uncover the sky. Don’t give up, please don’t give in. Although the…
Happy New Year 🥳 2021. 2020 was definitely one to forget, but it has been a year of deeper friendships, determination and resilience to get through it together. Some of my wishes for everyone, on every day: Peace Joy Health Equal Access to Healthcare Rehabilitation Empathy Hope Well-being Kindness Courage Strength Friends An open ❤️…
The 13th session of the Convention of State Parties (CoSP) on the Convention on the Rights of Persons with Disbilities (CRPD) is on now; 30 November 2020 (in-person meetings: Opening and the election of the CRPD Committee members), 1 and 3 December 2020 (virtual meetings: roundtable discussions, the interactive dialogue with the UN system and the closing). This was…
A friend and colleague, Linda Steele recently published a book, Disability, Criminal Justice and Law: Reconsidering Court Diversion, and I was disapponted to miss the launch of it on zoom yesterday! I have just started reading it, so will report back on that at a later date, but I already have no doubt it will…
For more than a decade, I have regularly stated in writing or verbally that I believe people living in residential care facilities with locked doors, or in secure dementia units, are locked in jail, and that the only other people who are also routinely locked in jail are convicted criminals. Secure dementia units also equate…
This poem is dedicated to two people I love, and who have been struggling with significant changes in their lives…
The rights of persons with dementia most often continue to be ignored, and denied. In this series of webinars, I hope this is the beginning of change, at least in one area of post diagnostic support, namely, rehabilitation. My blog today is of my presentation at this series of webinars, which were hosted by Lee-Fay…
Thanks to SBS for posting my article, written specifically for their website recently. https://www.sbs.com.au/news/insight/i-was-diagnosed-with-dementia-at-49-it-turned-out-to-be-a-new-beginning
I’ve been reading about Frida Kahlo since the quote below was highlighted on Facebook recently, and I’m not so sure it is such good advice. Why? Because it’s expecting others (a husband, in Frida’s case) to be mind readers. Frida Kahlo told her husband, “I’m not asking you to kiss me, nor apologize to me…
Inspired by reading the daily post from BrainPickings The Science of How Alive You Really Are: Alan Turing, Trees, and the Wonder of Life, I have just ordered a book titled, Natural Wonders, although it is currently out of stock. Amazon say it is “a collection of literature attempts to compile many of the classic…
In an article What to Do if You Suspect a Senior Is Being Financially Abused or Exploited, by Carolyn Rosenblatt. The journalist start by saying: Some have called elder abuse “the crime of the century.” This crime can be difficult to detect and investigate, but one of the few ways to stop an elder from…
This is an important article, and the journalist has used a term in the tiele I’m almost sucared to use: The way we’ve outsourced care for our alleged “loved ones”, paying people as little as possible to do what we’re not prepared to do ourselves. We are meant to love those in our care. We are…
