“But you don’t look like you have dementia…”

Thanks to my DAI members and family for supporting this webinar. If you haven’t seen it, please watch, listen, and learn.

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Thank you Ita

Thanks to Ita Buttrose, AO, OBE, an Australian journalist, businesswoman, television personality and author, and who was also Australia Of The Year in 2013 for inviting me to be interviewed on The Studio. Ita is a true media Icon, an inspiration for all women of all ages, and a woman who I feel lucky enough to call a…

Dementia / disAbility Rights / Discrimination / Human Rights / Living beyond dementia™ / Prescribed Disengagement ® / Stigma

ABC Breakfast interview with Paul Kelly and Ali Moore

It was a privilege to be interviewed on ABC Breakfast by Paul Kelly and Ali More, on 10 January 2017 in Melbourne. Almost better than that, was a family friend Jo Sullivan, a sports journalist who works there, who surprised me by escorting me to the studio (I had forgotten he worked there!!)! This is the interview:…

Daily Blog

20 things not to say or do to a person with dementia

This is a slightly revised and updated list of tips from the one I published here last week with 17 tips. The day after that I also wrote one called My dementia Trumpet call, explaining a little why I’d put together a list in the first place. Of course, there was some angst from a…

Daily Blog

The emotional toll of letting go for a PWD

In a blog comment this week about me handing things over to my BUB, I responded with this; ‘I have had to give up a couple of things this week, and hand the responsibility over to Pete.’ I felt physically SICK doing this, and incompetent, and guilty having to do so… even though I know he…

Rethinking Dementia: Normal Human Responses #12

Medicated and Motivated – NOT!!!!!! Questioning the abusive practice of chemical restraint. Guest blog by Leah Bisiani MHLthSc/DipBus/RN.1/Dementia Consultant Republished with permission as part of my Rethinking Dementia: Normal Human Responses series for World Alzheimer’s Month… #BanBPSD “Elder abuse is one of the vilest indicators of ageist discrimination within our current civilization. Whilst the concealed ignominy…

A simple reblog

I am extremely proud today… no more words needed!

Something you get through, by Willie Nelson

Although the theme this month is specifically about the #BanBPSD campaign I am involved in, I needed a ‘Willie Nelson fix’ today, and wondered if anyone may as well. Dementia is not something you ‘get over’, but with the right support, it is something we can get though. Lyrics When you lose the one you…

Rethinking Dementia: Normal Human Responses #11

Although this is slightly off topic, and not really aligned to the #BanBPSD series I planned for September 2018, I wanted to share this blog today, and reviews about my books, one which I wrote, in essence, as an attempt to normalise dementia. In 2016, I published two books, one called “What the hell…

Rethinking Dementia: Normal Human Responses #10

I really love this quote, and felt it quite relevant to this blog series about the need to #BanBPSD. Fronteirs in Neurology state: “Behavioral and psychological symptoms of dementia (BPSD), also known as neuropsychiatric symptoms, represent a heterogeneous group of non-cognitive symptoms and behaviors occurring in subjects with dementia.” Thankfully, at least in my opinion, there…

Rethinking Dementia: Normal Human Responses #9

In an effort to keep the #BanBPSD series going, I want to highlight a comment written by Peter Gordon from Scotland, who has become a dear friend, and is also a psychiatrist in Scotland who has been advocating for improved practice. He advocates also for a more transparent medical industry for many years, and I will…

Rethinking Dementia: 30 Normal Human Responses #6

World Awareness Month 2018 is well underway and #DAI continues to run their daily series of #Hello my name is blogs to raise awareness of dementia and to share our members stories However, this month, I am maintaining focus on my #BanBPSD blog series. Hence, I have put together the following list! Whatever we do, whoever…