Maybe life is a joke…

I’m particularly aware life probably is one big joke, as I had thought my blog had been set to private, then on the weekend through Twitter and Facebook, I discovered they are still publicly available. Hello. Here I am again, posting a rambling blog. So much for feeling the need to be more private! It…

Big Issue’s Big Lunch

I’m struggling to remember when this started, but today is another TBI Big Lunch, being held at the Adelaide Central Markets. It’s a remarkable day and brilliant fundraising event, specifically held to support the homeless community living in South Australia, who are also selling The Big Issue. I used to be a regular volunteer, and…

Moved to tears

Over the last ten years of advocacy, which have somehow turned into global activism for change for all people with dementia and our families, I’ve often turned to the late Dr Martin Luther King Jnr. and Mrs Rosa Parks for inspiration. I quote them regularly in speeches. I think of them, some weeks almost daily.…

DAI Side Event on Dementia as a disability

Originally posted by Dementia Alliance International today: Please join us online today for the DAI Side Event being hosted at the 12th Session of the Conference Of State Parties (COSP) on the Rights of Persons with Disabilities (CRPD). Dementia: The leading cause of disability. The overarching theme is of social inclusion and health, which are…

No excuses for being direct

I’m too old, and definitely past being worried if being too honest or too direct is seen as confronting or annoying. After all, just like you (sooner or later), I’m dying. To say I’m more than tired of the hidden agendas of academics and others in the dementia world, is a major understatement. Many, including…

The 20th century view of dementia continues…

Try as I might, I am currently really struggling to convince a group of global researchers on the importance of adding two simple things to a list of possible interventions following a diagnosis of dementia. It has got to the point, I feel discriminated and stigmatised by them, as most in the group generally seem…

Honouring people with dementia

Today I appeared at the last day of the dementia hearings as a witness at the Australian Royal Commission into Aged Care. I’m feeling emotionally shattered by this. Unexpectedly so. This was in honour of the 50 million people living with dementia globally and our families. I also dedicated today’s attendance at the Hearing and…