This is a slightly revised and updated list of tips from the one I published here last week with 17 tips. The day after that I also wrote one called My dementia Trumpet call, explaining a little why I’d put together a list in the first place. Of course, there was some angst from a…
When a person with dementia ‘comes out’ about their diagnosis, and openly admits they are living with the symptoms of, and diagnosis of dementia, there are a number of reactions and responses. The person with dementia (PWD) is thrown into complete turmoil; anger, ‘why me?’, surely it can’t be true, let’s get a second opinion,…
In a blog comment this week about me handing things over to my BUB, I responded with this; ‘I have had to give up a couple of things this week, and hand the responsibility over to Pete.’ I felt physically SICK doing this, and incompetent, and guilty having to do so… even though I know he…
The creator of Moving your Soul asked me to reply to a question from one of their blog followers; ‘I would like to know about your symptoms at the beginning of your process before the diagnosis of dementia’. It started me thinking… and revisiting this time in my life, and the impact of not being able to…
Many days it feels like I am drowning from the symptoms of dementia, and last night my husband and I were talking about the changes that are taking place again, and the fear we both feel when I might not be able to keep myself afloat. It is not the most comfortable emotional journey, constantly feeling like…
The book Diagnosed with Alzheimer’s or another dementia, co-authored with Associate Professor Lee-Fay Low was released officially on September 15 and has been well received. Professor Henry Brodarty wrote the Foreword for it, which I am sharing here: Thank you Lee-Fay for the shared twelve months we spent working on this book; it was truly a joy to work…
In my continuing series on What is dementia?, Part 4 I promised to review aphasia. It suddenly seems more relevant to me as well just now too; I was diagnosed with PPA when first diagnosed with a front temporal dementia, although had seemed to stave off the progression with speech pathology techniques. However in this last few weeks, it is…
Participant Information Sheet (General) Project Title: The what, how and why of complementary medicine use by Australians living with dementia. Project Summary: You are invited to participate in a research study being conducted by Dr Genevieve Steiner, NHMRC-ARC Dementia Research Development Fellow, at the National Institute of Complementary Medicine (NICM), Western Sydney University. This project…
In my continuing series on What is dementia?, for part 3, I am explaining in more detail, the two infographics published earlier this month.Please do let me know if I have any information incorrect! I am doing my best to ensure it is both accurate and easily understood by those of us living with or supporting…
I’d have to say, I am ‘exhaustipated’! No doubt, the whole dementia community is as well, as September is always a huge month for advocacy. With everything that is going on including my studies, Dementia Alliance International, and my personal life and health, it is certainly an interesting time. Thanks most of all to my best friend,…
There is no time today to write a blog, or for anything other than adding this graphic, which is also from our book, Diagnosed with Alzheimer’s or another dementia released last week. Like the umbrella graphic from a couple of days ago, this does not outline every single symptom, but is an overview of what to expect…
