Thanks to Ita Buttrose, AO, OBE, an Australian journalist, businesswoman, television personality and author, and who was also Australia Of The Year in 2013 for inviting me to be interviewed on The Studio. Ita is a true media Icon, an inspiration for all women of all ages, and a woman who I feel lucky enough to call a…
Dementia / disAbility Rights / Discrimination / Human Rights / Living beyond dementia™ / Prescribed Disengagement ® / Stigma
It was a privilege to be interviewed on ABC Breakfast by Paul Kelly and Ali More, on 10 January 2017 in Melbourne. Almost better than that, was a family friend Jo Sullivan, a sports journalist who works there, who surprised me by escorting me to the studio (I had forgotten he worked there!!)! This is the interview:…
Daily Blog / Dementia / Poetry
The loneliness of my grief is sometimes like my private torment, only visible to my heart and soul… I try desperately to hide my tears, to live inside my ‘denial bubble’, but every now and then the pain escapes. It is then that I realise that my eyes are filled with tears, and the indescribable sadness,…
This is a slightly revised and updated list of tips from the one I published here last week with 17 tips. The day after that I also wrote one called My dementia Trumpet call, explaining a little why I’d put together a list in the first place. Of course, there was some angst from a…
In a blog comment this week about me handing things over to my BUB, I responded with this; ‘I have had to give up a couple of things this week, and hand the responsibility over to Pete.’ I felt physically SICK doing this, and incompetent, and guilty having to do so… even though I know he…
In a blog published on 19 October 2018 on the site, strategy+business, There’s No Such Thing as Difficult People, written by Adam Kahane, there is a strong suggestion this is true. I took a screen shot from the site of Adam to use here, which has some information about who he is, and refers to…
Another great blog recently by Sonya Barsness called Being Better than a Stick in the Eye. In the beginning (i.e. after my diagnosis) my husband and I too were ‘starving’, for any old stick in the eye! And in the beginning we also meekly accepted any old stick in the eye. There was so little…
It was encouraging to see a my theory of Prescribed Disengagement® being discussed in a presentation at the LASA Congress in Adelaide this week, where on Sunday I joined a Panel discussion, “Is Australia Ready for the New Era?: A Candid Discussion around what the aged care system will look like, how it will be…
Living by the “two ears one mouth – applied in that proportion” principle is not always easy! Sometimes that will mean listening and perhaps not speaking at all, or maybe even not joining in including walking away, if you can only say negative or hurtful things. It’s our individual responsibility to control how we treat…
Congratulations to the Australian Financial Review 100 Women of Influence (100WOI) in 2018, and to the category winners and overall winner. It is an honour to be listed amongst a group of such remarkable women. The awards are in their sixth year and were this year expanded to include an Alumni Projects program, an initiative designed…
Please read this brilliant blog by my colleague and friend, Tina Minkowitz. “When we go to a doctor’s office we may feel nervous, apprehensive. We worry about test results, we worry about whether a treatment might do more harm than good. We put our trust in the practitioner provisionally and hope she is trustworthy and competent. But…
Following on from all the wonderfully honest #DAI #Hello stories shared during World Alzheimer’s Month or Dementia Awareness Month, which is a term I prefer, as I’ve been advised many times by my neurologist I don’t have Alzheimer’s, I decided a blog updating the changes in my cognitive disabilities was in order. Sometimes the raw…
