Thanks to Ita Buttrose, AO, OBE, an Australian journalist, businesswoman, television personality and author, and who was also Australia Of The Year in 2013 for inviting me to be interviewed on The Studio. Ita is a true media Icon, an inspiration for all women of all ages, and a woman who I feel lucky enough to call a…
Dementia / disAbility Rights / Discrimination / Human Rights / Living beyond dementia™ / Prescribed Disengagement ® / Stigma
It was a privilege to be interviewed on ABC Breakfast by Paul Kelly and Ali More, on 10 January 2017 in Melbourne. Almost better than that, was a family friend Jo Sullivan, a sports journalist who works there, who surprised me by escorting me to the studio (I had forgotten he worked there!!)! This is the interview:…
Daily Blog / Dementia / Poetry
The loneliness of my grief is sometimes like my private torment, only visible to my heart and soul… I try desperately to hide my tears, to live inside my ‘denial bubble’, but every now and then the pain escapes. It is then that I realise that my eyes are filled with tears, and the indescribable sadness,…
This is a slightly revised and updated list of tips from the one I published here last week with 17 tips. The day after that I also wrote one called My dementia Trumpet call, explaining a little why I’d put together a list in the first place. Of course, there was some angst from a…
In a blog comment this week about me handing things over to my BUB, I responded with this; ‘I have had to give up a couple of things this week, and hand the responsibility over to Pete.’ I felt physically SICK doing this, and incompetent, and guilty having to do so… even though I know he…
The short Vimeo I am posting below today was made by a friend and colleague in Scotland, which I found to be incredibly profound. For me, it spoke mostly about truth. But it also speaks about lies and deception, and arrogance and the lack of scrutiny. As I have become what others often tell me…
I subscribe to many newsletters, possibly too many, but it is easy to delete them if they are of no interest. This one came in today from the National Institute on Aging at the NIH, and as I am about to embark on a more disciplined exercise regime again, I thought it was useful. One…
What a day. It started with a webinar I was involved in, needing me to get up at 4am. After that, and two online peer-to-peer support groups, I was interviewed again by Spence Denny (2nd time this week), to comment on the Royal Commission into Aged Care Quality and Safety. I spoke about Human Rights being…
The following article which is about a 5 year research project is truly terrifying, and only confirms my committment towards the need to Rethink Dementia and ban BPSD. It is thanks to Tina Minkowitz who is an attorney and psychiatric survivor in New York, and founded the Center for the Human Rights of Users and Survivors of Psychiatry, that…
The last few months, I have noticed a lot of changes in my physical and cognitive health, and have watched on as so many others are struggling with worsening or new health issues, or facing difficult personal challenges. It is worrying, and on some days, it would be so easy to give up not only…
I posted this image and quote on Facebook yesterday, and received this inspiring response: “Do you know? You have just inspired me to put a $1 a day away for our local farm animal sanctuary (Greener Pastures in Waroona WA) I think $365 on the 5th of january 2020 would buy lots of weetbix for…
The last few weeks I’ve been watching on the sidelines as numerous people with dementia have been abandoned, and even abused by their families or a partner. It’s truly disturbing to watch, and I fully understand the pain and impact of this on worsening a persons dementia symptoms, as have had it happen to me.…
