Looking back, to move forward

This blog started 9 years ago, and so I decided to review and add here, one post per year from August, to see what, if anything has changed, and also how my writing and thinking has evolved. My aim is to provide an authentic voice, to be a true advocate, and not to be persuaded…

DAI Webinar with Professor Steven Sabat

You are invited register for the August 2020 DAI “Meeting Of The Minds” Webinar”,  What People Living with Dementia Teach Us About Our Shared Humanity presented by Professor Emeritus Steven Sabat. Wednesday, August 26, 2020 (USA/CA/UK/EU) Thursday, August 27, 2020 (AU/NZ/ASIA) Please note: this is one event, set in a number of different time zones. Register here… About the…

‘Empire’ says it all.

A troubled past in the multimillion-dollar nursing home empire of Epping Gardens “The company that owns the coronavirus-plagued Epping Gardens aged care home in Melbourne also runs another home in Sydney which scored zero out of eight in a quality assessment last year.” Read the full article here… Sarah Holland said it for me. Shocking.

Transcendental Meditation & Dementia

First published on my Living Beyond Dementia™️ website June 30, 2018. Anyone who follows this site knows I have been a believer in Bredesen’s Protocol, although I do have some healthy scepticism as well! In saying that, I believe if we don’t view dementia as a chronic disease, which brings with it acquired cognitive disabilities,…

Freedom

I will only feel like I’ve achieved my advocacy goals when we are all FREE. Free: – from stigma for having dementia – from discrimination due to dementia – from confinement in nursing homes – from segregation in secure dementia units – from chemical restraint – from physical restraint – from Prescribed Disengagement®️ – from…

Focusing on Brain Health

Many who have followed me here for a while will know I have adapted my lifestyle and focused on brain health as tools to help live more positively with dementia. Due to some personal stress and grief, I’ve been rather unfocussed! Hence, I really need to focus on brain health again! There is actually a…

Questioning…

An Australian organisation called Beyond Blue which is focused on supporting mental health said in a recent article it: “Recognises and understands the feelings of anxiety, distress and concern (BPSC-19) many people may be experiencing in relation to the coronavirus (COVID-19) and offers some advice on how to look after your wellbeing.” Beyond Blue is…

DAI Webinar: Gait Training & Dementia

DAY/DATE(S): Wednesday, July 29, 2020 (USA/CA/UK/EU) Thursday, July 30, 2020 (AU/NZ/JP/SGP/TWN) Please note: this is one event, set in a number of different time zones. Register here… About the Webinar: People with all forms of dementia can experience changes to their walking and balance. There are many factors that can contribute to these issues that can be…

Reduced to a disease

I am more than my ‘lived experience’ of dementia. Seriously. And I am much more than just a ‘Dementia Advocate’. True. Many years ago, I started advocating for people with dementia who are invited speakers to be listed on the program by more then their disease. Back then, not even the persons name was added.…

Too old for a nursing home…

When my father in law was needing more support than we could get for him to keep him in his own home, we felt we had no choice but to suggest he move into a nursing home. His first response was: “I’m much too young for a nursing home.” He was well over 70 years…

“For this I am Grateful”, by Christine Thelker

This wonderful memoir, written by my friend and DAI colleague, reinforces why it’s not ok to tell people with dementia to only go home to die, or that life ends with a diagnosis of dementia. As an activist (advocate?) for more 12 years, this book also reminds me how tragic it is that most advocacy…

I lost my undies…

In March, when I started this blog I went out to the clothes-line to get in some washing (mostly my underwear), and the line was empty. I went inside and thanked my husband for bringing in the washing, but also felt a little confused, as he would not usually put my clothes away, and I…