Language and dementia

A number of people with dementia, or caring for loved ones with dementia have been discussing and reviewing the language being used in the sector. The LGBTI community have their own document on the use of what is appropriate and what is offensive language, and this goes some way to assisting us in the development of…

People with dementia as Advocates

There are many positive things happening globally about dementia. Research is making small headway, governments are at least starting to listen, the carers of people living with dementia have had a strong voice for some time, and now, very occasionally people with dementia are speaking out. Richard Taylor and Christine Bryden are two people I…

Talking about dementia

I started blogging to record my world. My blog now also tries to highlight the human and personal costs of a diagnosis of dementia, the significant financial impact to individuals and families, and responds to the current status of age appropriate resources and services, or lack thereof, for people diagnosed with younger onset dementia and…

I can’t find the chicken

Well, I did eventually find it… In the microwave; 3 or 4 days later when the stench took over the kitchen! This happened some time ago, and silly little things like this are happening to me every day now, much more often. Not monumentally catastrophic, but annoying and life changing just the same. Things that…

Ramblings of the demented

There is no rhyme or reason to my thinking today, other than finding a recipe for my Project 366 Conversations and Recipes Page. I can’t find any of my blog drafts, cleverly but mysteriously filed away somewhere on my laptop, and can’t think of anything interesting to write about so I’m doing a bit of NaNoWriMo…

Human Rights, dementia and the elderly

ALL Australians are meant to be protected by The Universal Declaration of Human Rights, a wonderful document one that took many years to design, and to get countries to agree to. However, it seems not to apply to the health and aged care system in Australia. When we look at this declaration, we fall short…

‘I live in a little cloud’, by Christine Bryden

Today I wanted to honour another person who I am privileged to have met and can call my friend, who is also living positively with dementia. Christine Bryden is an amazing woman, diagnosed age 46 with dementia (she is now 63), who is still advocating publicly for people living with or caring for people with dementia. She…