The 20th century view of dementia continues…

Try as I might, I am currently really struggling to convince a group of global researchers on the importance of adding two simple things to a list of possible interventions following a diagnosis of dementia. It has got to the point, I feel discriminated and stigmatised by them, as most in the group generally seem…

Honouring people with dementia

Today I appeared at the last day of the dementia hearings as a witness at the Australian Royal Commission into Aged Care. I’m feeling emotionally shattered by this. Unexpectedly so. This was in honour of the 50 million people living with dementia globally and our families. I also dedicated today’s attendance at the Hearing and…

An update on Alzheimer’s Disease (AD) in the elderly

It seems that expert researchers and medical doctors have had it wrong… in fact millions of patients they diagnosed with AD, don’t in fact have it. From an article, New type of dementia identified By Michelle RobertsHealth editor, BBC News online, 30 April 2019. “There’s no doubt that many people who were previously called Alzheimer’s,…

Beyond 2020: Australian National Disability Strategy

HAVE YOUR SAY IN AUSTRALIA: Consultation on the National Disability Strategy for beyond 2020 The Commonwealth Government is consulting with people with disability about the new national disability strategy which will replace the current one that ends in 2020. It’s all about creating a more inclusive society that enables people with disability to fulfil their…

Our attitude is important

From the blog, Memory for two: “For the first three months after Ash’s diagnosis (and many months/years leading up to it) I was cross with him and at the world for not giving me the life I was expecting. As a result Ash was permanently in a state of turmoil and really struggled to cope…