Music to chill to…

It has been one very busy month and I have posted lots of blogs that have still got me thinking! Hopefully they have made you think too, rather than offended or upset you. My intention is to have an honest, open global conversation, about the things that really matter, not to offend. If we speak…

Just because you can’t see it…

You may not believe it, or see it, but people with dementia are still being Prescribed Disengagement®, and only supported to die, rather than to live positively. You may not believe it, but if you have a stroke, you will recieve rehabilitation, whereas if you are diagnosed with dementia, you won’t. You may not believe…

Whose lives is activism improving?

There are more than 50 million people living with dementia and a new diagnosis somewhere in the world every 3.2 seconds (WHO). I am one of them. Since my own diagnosis 12 years ago, I went from the depths of despair and hopelessness after being diagnosed, primarily caused by the Prescribed Disengagement®, to becoming a…

Inclusion… or exclusion?

We are well over half way through Dementia Awareness Month, and I’m tired, but continuing with my daily blog series, in an effort to create new thinking, and discussion. Some of the topics I’ve chosen are difficult to write about, like this one,. They may even cause offence to others, including causing dissent amongst some…

Activist and Activism: what do they mean?

In the last year or so, many people with and without dementia have started to document the history of what they perceive as dementia advocacy and/or activism. It almost feels like it is being done, as if to justify that the last more than two decades of advocacy have been worth it, and so I…

Dementia and disAbility

It’s an Interesting time in dementia advocacy, and I’m currently witnessing a lot of justification or rationalisation that the last 2+ decades of advocacy have been worth it. In part because of that, I have been reading lots of my old blogs, just to see what I have previously thought and said about things, and…

It’s logical…

It’s no different for people with dementia. Except the effort has not been put into understanding the similarities. If people with dementia are to be blamed for their normal human responses, then it’s time everyone else is too. BPSC-19 has basically proven people with dementia are not much different to anyone else when faced with…

Equality and Inclusion: really?

Recently I received an email inviting me to become involved in a new organisation, and also to endorse it. Although I was sent the final Call To Action, and a list of the founding members, I didn’t feel I had enough infomation to do either, without a conversation. When I met with this person, I…

Rethinking Dementia Care by banning BPSD

Two years ago I published a series of blogs focused on the need to rethink dementia care, to reframe dementia entirely, on dementia as a major cause of disability, but most especially on the need to ban BPSD (Behavioral and Psychological Symptoms of Dementia). The Coronavirus pandemic has almost proven BPSD is a false construct,…