Reduced to a disease

I am more than my ‘lived experience’ of dementia. Seriously. And I am much more than just a ‘Dementia Advocate’. True. Many years ago, I started advocating for people with dementia who are invited speakers to be listed on the program by more then their disease. Back then, not even the persons name was added.…

Too old for a nursing home…

When my father in law was needing more support than we could get for him to keep him in his own home, we felt we had no choice but to suggest he move into a nursing home. His first response was: “I’m much too young for a nursing home.” He was well over 70 years…

I lost my undies…

In March, when I started this blog I went out to the clothes-line to get in some washing (mostly my underwear), and the line was empty. I went inside and thanked my husband for bringing in the washing, but also felt a little confused, as he would not usually put my clothes away, and I…

R.I.P. my beautiful Boris

‘Stop all the clocks, cut off the telephone’ Stop all the clocks, cut off the telephone, 
Prevent the dog from barking with a juicy bone, 
Silence the pianos and with muffled drum 
Bring out the coffin, let the mourners come. 
Let aeroplanes circle moaning overhead 
Scribbling on the sky the message He Is Dead, 
Put…

Ending confinement and segregation

Ending confinement and segregation: barriers to realising human rights in the everyday lives of people living with dementia in residential aged care. This article was published on 25 Jun 2020, in the Australian Journal of Human Rights, by Linda Steele , Kate Swaffer , Ray Carr, Lyn Phillipson & Richard Fleming. Abstract: Human rights are increasingly being considered in Australian law reform…

Patch Adams & #BanningBPSD

“If you treat a disease, you win, you lose; if you treat a person, you win, no matter what the outcome.” (Patch Adams) The movie, Patch Adams (which I love), is based on the true story of a heroic man, Hunter “Patch” Adams, determined to become a medical doctor because he enjoys helping people. He…

Ouch…

The quote below is the type of thing I read too often, written by a care partner about the person with dementia that they are supporting (love?). It’s one of literally millions of public posts similar to this one, that inspired my blog published yesterday. Ouch is probably an understatement. I’m sick of everything. Sick…