In my first volume of poetry, Love, Life, Loss, A Roller-coaster of Poetry, I wrote a poem called disAbled, which also appears on my poetry page of this website. A new friend I met at ADI in London this year living with dementia asked if she could read it out to a group she meets with in…
The real price of a diagnosis of dementia is endemic and systemic DISCRIMINATION, caused by IGNORANCE and STIGMA. In every area, people with dementia are being denied the right to contribute. People with dementia are being discriminated against, and their rights are being violated by the very people who claim to be working for us.…
26/11/11 – 5.15pm: So, here I am I’m writing for nanowrimo, trying to get to 50,000 words. a novel is something i have always wanted to write and get published. more than one! now the thought is quite scary, as my use of language is so impraied or disabled. remembering the words i’d like to use, the ‘big’…
This is a short essay about my experience with the words disability and disabled, in relation to my progression of illness and its disabling impact on my life. These words feel insulting, patronising and humiliating, and even more so as my disease develops because they undermine who I am, and appear to be defining me as a…
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