The D-word is almost like the C or F words used to be, too upsetting to say out loud. The word dementia is simply too confronting or challenging to talk about or face up to for so many people. Not just the friends and family who don’t know how to cope with someone they love telling them they…
There are lists written on this site, and on many sites outlining the challenges of a diagnosis of younger onset dementia. Having to give up paid employment is near the top of the list and I’ve not found much written up about how difficult it is for a person with dementia. It is in effect, a…
There are many negative things that happen after a diagnosis of dementia, and many that are ongoing challenges and changes, but for me the most difficult ongoing ones to live with are the isolation and loneliness. So many friends slip away after finding out you have dementia, not because they are bad people, but because…
An online friend has given me some topics to write about, and today I thought I’d try a NaNoWriMo style writing of this one; “How do you feel about what the future holds for you – the future in 1 year, in 2 years and in 5 years? How does it make you feel? What…
The real price of a diagnosis of dementia is endemic and systemic DISCRIMINATION, caused by IGNORANCE and STIGMA. In every area, people with dementia are being denied the right to contribute. People with dementia are being discriminated against, and their rights are being violated by the very people who claim to be working for us.…
The stigma and ignorance continue. Today I sat through another meeting, where one topic on the agenda was about whether to nominate a person with dementia to join a Ministerial committee, to represent this committee I am on. Sadly, there was not one person there who felt it suitable, and in fact one carer suggested perhaps…
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