Dementia Alliance International (DAI) was set up by people with dementia to ensure we have an authentic voice, and so that we are not taken over by either organisations or family carers. It is important we have our own voice, just as people with disabilities, the gay community, and Aboriginal and Torres Strait Islanders fought for…
I’ve been subscribing to the magazine Management Today for a few months now, and find many of the ideas in their articles could easily be adapted to re-empower people with dementia back to more productive and positive lives. Of course, they apply brilliantly to business, and life in general, but I have found since being diagnosed with dementia…
Since ADI 2012 in London, I have maintained contact with a few people I met from Scotland, many who are members of the Scottish Dementia Working Group. This is the eleventh year they have been operating, and they are a powerful voice and strong advocates for all people with dementia, as well as a wonderful…
Now that the Australian government have recognised dementia as a National Health Priority, we will all be watching and listening carefully to see how this decision translates into change, reform and improvements in research, diagnosis, treatment, service provision and care for people diagnosed with dementia and their carers (BUBS). As this historic decision has been…
Richard Taylor gently reminded me yesterday of the Abraham Lincoln quote, about only pleasing some of the people some of the time. Thank you. I feel vaguely fragile after another week of taking deeply personal risks by speaking out honestly and receiving more rebukes or disagreement with the way I feel about things. My dear…
Recently I gave a second nickname to my DH (dear husband!), which is BUB, or Back up Brain and we find this terminology far easier to live with than carer. We think of a back up brain as being the same as the hard drive in a computer. He said recently, it empowers him to be by my side and with me,…
The Scottish Dementia Working Group celebrated their 10th Anniversary at the ADI 2012 London conference. I found an article today that I am sharing below, written about them in 2008, and am surprised we are not further along the path of consumers with dementia having their voices not only heard, but ensuring significant change, rather…
There is no rhyme or reason to my thinking today, other than finding a recipe for my Project 366 Conversations and Recipes Page. I can’t find any of my blog drafts, cleverly but mysteriously filed away somewhere on my laptop, and can’t think of anything interesting to write about so I’m doing a bit of NaNoWriMo…
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