Inclusion or exclusion of people with dementia?

I was in Sydney last week for the HammondCare RiskyBusiness2 conference, and on Friday I co-presented with the vice chair of the Alzheimer’s Australia Dementia Advisory Committee (AADAC) about the set up and activities of that committee. My other presentation was on models of care and ways of keeping people with younger onset dementia employed.…

Steve’s story

The following is a Facebook post written by Steve, a new friend if mine from Queensland who has younger onset Lewy Body Dementia with Parkinson’s. I have only had the pleasure of meeting him recently, and found him to be positive and incredibly proactive about living with his diagnosis, and with his permission I am publishing it…

Finding a voice for PWD

I’m often challenged by the fact that conferences, seminars, forums or educational programs about dementia, often marketed to people with dementia (PWD), and as events which are inclusive of them, are organised exclusively by people without dementia, and for the most part, without people with dementia as plenary speakers. Many of you know I have regularly railed against…

Day 2, AADAC

We have ended our meeting on a high, full of enthusiasm and ideas for the future voice of people with dementia in Australia. This photo was taken today, with the two people I had not noticed were missing for the shot yesterday. There was also one member not able to be here, so in total…

Alzheimer’s Australia Dementia Advisory Committee

Today is a historic one for Australia, and especially for people with dementia living here. It is the first meeting of the Alzheimer’s Australia Dementia Advisory Committee, being held during Dementia Awareness Month and Week. With permission, I have published this photo, which includes Glenn Rees, and two staff, Samantha and Ellen. One member was not…