BPSD vs BPSC-19

I’ve written many time about BPSD or ‘challenging behaviours’ as well as what I have termed BPSC-19, but the comparison may not be obvious to everyone. Hence, for day 27 of Dementia Awareness Month in 2020, I decided to list the ‘symptons’ of each here. If we check out the two lists we could be…

Just because you can’t see it…

You may not believe it, or see it, but people with dementia are still being Prescribed Disengagement®, and only supported to die, rather than to live positively. You may not believe it, but if you have a stroke, you will recieve rehabilitation, whereas if you are diagnosed with dementia, you won’t. You may not believe…

Whose lives is activism improving?

There are more than 50 million people living with dementia and a new diagnosis somewhere in the world every 3.2 seconds (WHO). I am one of them. Since my own diagnosis 12 years ago, I went from the depths of despair and hopelessness after being diagnosed, primarily caused by the Prescribed Disengagement®, to becoming a…

Gait Retraining and Dementia, by James McLoughlin

On Day 21 of Dementia Awareness Month 2020, which is also referred to as World Alzheimer’s Day, I wanted to change the pace here, with something positive. There is a real flurry of activity going on all around the world today, with events, webinars and conferences, many campagins in progress, and reports or survey findings…

Inclusion… or exclusion?

We are well over half way through Dementia Awareness Month, and I’m tired, but continuing with my daily blog series, in an effort to create new thinking, and discussion. Some of the topics I’ve chosen are difficult to write about, like this one,. They may even cause offence to others, including causing dissent amongst some…

Activist and Activism: what do they mean?

In the last year or so, many people with and without dementia have started to document the history of what they perceive as dementia advocacy and/or activism. It almost feels like it is being done, as if to justify that the last more than two decades of advocacy have been worth it, and so I…

Rethinking Dementia Care by banning BPSD

Two years ago I published a series of blogs focused on the need to rethink dementia care, to reframe dementia entirely, on dementia as a major cause of disability, but most especially on the need to ban BPSD (Behavioral and Psychological Symptoms of Dementia). The Coronavirus pandemic has almost proven BPSD is a false construct,…

Loneliness

A sense of loneliness So deep It takes my breath away Reminding me of those departed Lingering inside my heart Lost to the stigma of dementia Tales of despair Whisperings of days gone by Deteriorating abilities Sadness Sitting just inside my soul Yearning for myself Kate Swaffer 2014

Dementia and survival

Dementia and me What the hell happened to my braindiagnosed with dementia when I was much too youngmy children still at schoola deadly terminal disease effectingmemory, thinking, perception, judgment, language and speech But worse than that, effecting mylife, family, friendships, my sense of self, my identityand a bucket load of guilttruckloads of stigma discrimination and…

Rejecting care?

“Dementia care is caring for people Who often do not know they need care, And don’t want to be in care; No wonder they may become angry and upset.” Author: Kate Swaffer © 2012 #BanBPSD Also published in: Love Life Loss, A roller-coaster of poetry (2012) Graphic Print Group, Richmond, SA and “What the hell…