Who’s ‘Living with dementia was the title of my blog poem yesterday, and the last 24 hours has seen various conversations about this topic, one I had a reasonably strong opinion about. As always, the direction you are taking, does not mean it is the right way, or the wrong way. It is simply your way, your…
English: perseverance /ˌpərsəˈvi(ə)rəns/ Noun 1. Steadfastness in doing something despite difficulty or delay in achieving success. 2. Continuance in a state of grace leading finally to a state of glory. Synonyms persistence – tenacity – pertinacity – assiduity (source: google.com) This trait is beyond doubt one of the most important one required for facing dementia, especially for the…
This is more true for the husbands, wives, parents, daughters, sons or friends who care for a loved one living with a diagnosis of dementia, because as the disease progresses, it could be we become a whole lot less lovable. Most of the blogs I read written by adult children caring for a parent with…
People with dementia are labeled many things, from wanderers to absconders, to refusing to communicate, to non compliant! It is often written we have inappropriate behaviour. The symptoms of dementia, are regularly written up as the reason for the negative responses our carers have. As a person with dementia, I find this incredibly sad. People with dementia…
Yesterday I found this fabulous picture from saatchi.uk, and then added the words with a little help from two of the boys in my family (!), as find it perfectly matched with the union of the image and words. Living with dementia means it is sometimes quite hard to look in the mirror, as what…
There are many positive things happening globally about dementia. Research is making small headway, governments are at least starting to listen, the carers of people living with dementia have had a strong voice for some time, and now, very occasionally people with dementia are speaking out. Richard Taylor and Christine Bryden are two people I…
Well, a new day is here, and an email from one young son that commented on my last blog saying, remember it’s London, most of it is shit cramped living, and, maybe you guys are just spoilt for luxury, hahaha :-). I guess there might just be some truth in both those comments, however today did not start off…
I would like to say loudly that even though my father in law and some other friends of mine who are now living in residential aged care settings have said things like they felt like they were locked in prison, or they would rather be home, or even that they wish they were dead, rather…
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