Loneliness, dementia and dying

Today is Day 28 of my National Poem Writing Month challenge, and I have managed to write a haiku each day, often using an image to spark my imagination. Todays poem is called Alone and has me thinking more about loneliness, dementia and dying. I’m not so sure the loneliness is any worse than when you are facing…

Stand up and speak out…

Recently I posted Jennifer Bute’s story of being diagnosed with dementia. A couple of her quotes really stood out to me. The first quote is about compensating for the symptoms of dementia: ‘To compensate, I became ruthlessly efficient,  writing everything down as soon as I had spoken to the patient and   following up referrals immediately. However, I…

Living outside the stigmas and expectations of others

Recently Richard Taylor  wrote to the following message to a person with younger onset dementia living in Queensland who had connected with him via his website; “Thank you for taking the time to write. Have you met Kate Swaffer? She is a kindred spirit, who also lives in Australia, of ours who hears the same…

The ramblings of a writer…

Why do writer’s write? The only reason writers write is they can’t help it; they have to! We are compelled to put pen to pape or fingers to the keyboard, whether it is published or not, almost like an illness or addiction. As a child, I can even recall sitting on the loo, writing on the toilet…

A few things…

As always, there are still a few things to do when someones life ends, a few loose ends, a few things you’d wished you’d always done, a few things you wished you’d never done, a few people who wished they had seen you more often, a few people who you wish you had seen more…

Research into dementia

In DPSNews.com.au an article Alzheimer’s Research: lost cause, written on 17 October 2012 leads with; “Some of Australia’s leading experts on Alzheimer’s disease say an alarming number of drug companies are abandoning research into treatments for dementia. The ABC reports despite huge advances in neuro-imaging and diagnostic techniques, there has been little progress when it…

Mourning and dementia

Last week I attended a meeting of the Coromandel Valley Quilters club, supporting someone from the The Bereaved Through Suicide Support Group Inc. as they were one of six recipients of $500 being donated by the quilters club. It was with some shock when another group, Tender Loving Carers (a new group set up in South…