Reblogged from ‘Dealing with Dementia’

Who Controls YOUR Digital Legacy? Note: I have copied the whole blog post here as many of my readers tell me they mostly don’t open the links, and there is some excellent new information here. We should all consider our digital legacy. Thank you Kay. Posted by Kay Bransford on January 24, 2013 in A Day in…

Happy Australia Day

As ‘Australians’ celebrate Australia Day, I always spare a thought for the traditional owners of this land, and feel quite sad they were over-run by white Anglo Saxons. There is nothing we can do that can change it, but it always bothers me slightly that on Australia Day the media and most white Australians celebrate and…

Carers and Friendship

This is more true for the husbands, wives, parents, daughters, sons or friends who care for a loved one  living with a diagnosis of dementia, because as the disease progresses, it could be we become a whole lot less lovable. Most of the blogs I read written by adult children caring for a parent with…

The train wreck of dementia

The story I posted earlier this week DEMENTIA: The Long 24 Hours by Norman McNamara tells of Norms dementia journey with great clarity, and ripped our heart-strings right out of our chest. Reading it was devastating; it was like viewing our own dementia train crashing. Norms courage in sharing it is inspiring, and he and Richard Taylor will help keep me motivated…

Talking, dementia and humiliation

Talking eventually becomes an embarrassment or humiliation for a person with dementia. I am finding this now; if I’ve committed to an event or forum, as I get tired, my words start getting jumbled, or the word finding gets worse. The more formal part is easier, as I always refer to notes, but the question time or other…

DEMENTIA: The Long 24 Hours by Norman McNamara

Hercules Piorot always uses this phrase in his repertiore of speech; ‘the little grey cells.’ My little grey cells are more confused lately, and refusing to fire up like they once did. Another PWD in the UK, who I have not met but have regular contact with via the internet wrote this to me recently…

Blah blah blah

Some days I can feel my brain thinking, but all I can hear is blah blah blah… This could be the worst or best blog I have ever written, or somewhere in between! Blah blah blah is where my little grey cells are at, and if I had a real human visitor, I suspect the…

Feelings about dementia

After reading Kay Bransfords blog I don’t understand why you are so upset today, I responded with my own feelings about dementia, and whether a PWD can cause others to feel duress. In reality, no-one cannot cause another person to respond or react a certain way. You cannot cause a healthy person to respond or react a certain way.…

“Oh, but you’re just like me.”

Many times a day I walk around in circles at home, wondering what I had been doing, or what I was going to do. It is not quite confusion, but more like a vagueness caused by forgetfulness. My brain used to be so sharp. I used to have about 12 television screens going on at…

Louis Theroux: Extreme Love – Dementia

In case you don’t realise Dementia is an awful disease, and can’t understand why people in the early stages of dementia and their loves ones fear what is ahead, watch this video. It is worthy of a being my second blog today. It also shows the absolute depth of human love and committment by those people who love and…

Inside my heart: a poem

My heart is drifting upwards Held only by a fragile piece of string Floating high amongst the clouds A balloon, about to burst from pain.   One end of the string, tied securely to my heart The other end held firmly by many sets of hands My true love, my boys and my friends Gently and lovingly…

The ramblings of a writer…

Why do writer’s write? The only reason writers write is they can’t help it; they have to! We are compelled to put pen to pape or fingers to the keyboard, whether it is published or not, almost like an illness or addiction. As a child, I can even recall sitting on the loo, writing on the toilet…