Remembering I can’t remember

There are moments I feel alarmed about the day Mr Dementia is going to grab that bloody eraser and rub out the memory of my husband and two beautiful sons, of our shared times of love and fun together. As you know, it has already started happening, but the thought of not remembering having given…

All alone

Yep, that’s me. Not one person took up the 366 day challenge to blog with me, and then publish it as a book, so if it is to be, it is up to me… writing, all alone, to keep up with my goal of writing daily blogs. I might find innovative ways to get some of you…

2011 in review

The WordPress.com stats helper monkeys prepared a 2011 annual report for this blog. Here’s an excerpt: A New York City subway train holds 1,200 people. This blog was viewed about 4,900 times in 2011. If it were a NYC subway train, it would take about 4 trips to carry that many people.  

Tattoos, art and dementia

… I just don’t get them! A blog follower who signed up to my blog last year has them. Almost all of the staff at the nail salon I go to have them, except the owner of the salon who is like me, and is most definitely not into them! We talked about it at…

Something to think about

Amber Petty can be heard on 5AA 1-4pm every weekday over summer, and is a columnist for The Advertiser. This story was written by her and published in The Advertiser December 2011, and she has given me permission to publish it on my blog. Wake up Sunday morning “1. My name is Australia, and I’m…

Locked in prison… another view

I would like to say loudly that even though my father in law and some other friends of mine who are now living in residential aged care settings have said things like they felt like they were locked in prison, or they would rather be home, or even that they wish they were dead, rather…

Awesome idea?

Yesterday I received a Daily Digest from WordPress about Kick Off 2012 with Project 365 (which should be Project 366 as that is how many days are in 2012!) which obviously means to blog something every day. I decided to see if I had been keeping up with the goal I made on 2nd September 2011 to blog…

Locked in prison

The human cattle yards for aged care and dementia are playing on my mind again. As many of you know, my father in law has moved into another residential care facility because he now needs high care, one with a brand new private room (rare in high care in SA), in a brand new wing.…

Time for some cheer

No, no more sadness today! Even I can’t take it! It is time for a laugh and some belated Christmas cheer. Today, the third loved one in my life (my father in law) was safely deposited into a high care bed in an aged care facility, a very difficult transition for him as he had…

The anonymous voice

Since I’ve joined the wider global community through online networking and blogging, and since speaking at the Alzheimer’s Australia National Fight Dementia campaign rally and appearing on the ABC TV 7.30 Report, I am gathering many new friends, people who have seen my story and want to share this journey on my dementia train. I am…

More on Person Centred Care (PCC)

One of the oddest things about service providers and doctors in the life of those of us with dementia is their surprise when we forget something! Forgetting an appointment or an appointment IS our world, even with all the reminders in the world, even a phone call 30 minutes prior to it, sometimes even 30 seconds!…

Open your mind

It’s like a trap. If it is closed, it will trap you into judgemental thinking, stop you from accepting change (which comes to you whether you want it to or not). In fact, if you open this trap, it will insure all sorts of incredible opportunities come your way, and you will find your intuitive…

Planning my funeral… what a laugh!

Early in 2010, after being told in 2009 I had between 6 months and 2 years to live, I decided to partially pre-plan my funeral, hoping to remove some of the burden that would come immediately after my death. Not everything, but the basic information, which I have found when planning a loved one’s funeral…

A happy death

Someone I have worked with and grown to love this year through my new role as advocate and activist for dementia wrote today… you’ve motivated me to keep trying to make a positive difference in the lives of people living with dementia, especially to be treated as full citizens and human beings throughout their lives. I…

Christmas and petrol

Last week, if I had been a car, I wouldn’t have made it to the petrol station to fill my tank. The last few weeks and months have been quite the battle, between sharing my love around to friends, offering some of them tangible support, and dealing with the changes in my dementia, it has…