Yesterday I nominated for the Best Australian Blogs 2013 Competition. These are the instructions I have been given thus far: Let everyone know! √ The competition hashtag is #bestblogs13. Let your readers know via your blog and Twitter so they’re ready to vote for you in the People’s Choice Award round. √ Here’s what’s happening with the…
In a blog comment this week about me handing things over to my BUB, I responded with this; ‘I have had to give up a couple of things this week, and hand the responsibility over to Pete.’ I felt physically SICK doing this, and incompetent, and guilty having to do so… even though I know he…
Recently my BUB (dear husband / back up brain) and I were discussing the impact of the constantly changing deterioration of my abilities, how it feels for him to watch it happening, and perhaps even worse than that, there is nothing he can do about it. Quite often he notices things before I do. I wondered how it is for…
Yesterday a fellow blogger Patrick Fisher awarded me with the Very Inspiring Blogger Award. THANK YOU. Patrick is helping his mum look after his father, who was diagnosed with dementia in 2008, the same year I was. Thank you once again Patrick, and keep up your wonderful and inspiring work, and your blogging. Your Dad, and your Mum,…
It was an exhausting few days, but very valuable and I feel more confident things will change. Not only for people with younger onset dementia, but for everyone with dementia. As we collectively work on eradicating the stigma and discrimination, though awareness campaigns and speaking out in general, the wider community will ultimately have no choice but…
Word finding, as a blog reader gently reminded me, is more a case of word retrieval. Her comment yesterday ended with this hilarious quote; ‘If I had a second brain it would be lonely!’ I often say, ‘the lights are on but no-one s home.’ But enough of the fun stuff! Word retrieval or word finding is…
The creator of Moving your Soul asked me to reply to a question from one of their blog followers; ‘I would like to know about your symptoms at the beginning of your process before the diagnosis of dementia’. It started me thinking… and revisiting this time in my life, and the impact of not being able to…
Some days seems just like this… every way you turn, someone or something seems to be holding you back. It’s probably quite rare that the ginger cat pictured here, is happening to you. We are usually the only ‘thing’ that is holding us back from achieving our dreams, from being contented and happy, from having good…
A courageous woman from Canada who lives with the diagnosis of a younger onset dementia wrote in a beautiful story titled The Red Cardinal; ‘I am getting off the couch and I am off to seize the day for I can place no trust in tomorrow.’ Mary Beth Wighton © 2013 It seems none of…
Yesterday I had a very lazy Sunday, something like the proverbial ‘day of rest’ my moderately fundamentalist Methodist upbringing endorsed! It is rare for me to hang out only watching rubbish on television, or reading for the sake of reading, rather than for a purpose. Well, even reading for pleasure is reading with a purpose. It…
Recently, I have realised more clearly my directness and honesty, and deep desire for people to be honest in response has lost me friends over the years. Hence I’ve been wondering, does this mean I need to rethink who I am, or how I act or respond to the world? It came up in conversation with another friend…
Social inequality is characterised by the existence of unequal opportunities or rewards for different social positions or statuses within a group or society. There are two main ways to measure social inequality: inequality of conditions, and inequality of opportunities. Inequality of conditions refers to the unequal distribution of income, wealth and material goods. For example,…
I read an article titled ‘In search of a good ending’ in the Medical Journal of Australia this week, written by Ann Gregory and Ruth Armstrong (Med J Aust 2013: 196 (4) 175). The first line stood out like the proverbial dogs balls; ‘Despite much development and increasing complexity in health care, humankind’s mortality rate…
Somewhere in the distance The sun is still shining Heading towards a beautiful sunset The wind is blowing And the trees are gently swaying The moon will appear in all its glory Glowing through the night stars Working its way towards morning When the sun will reappear Cumulus clouds haloed above our heads Shadowing the sun,…
Often I hear others describe the ‘bad’ things that have happened to them as a gift. Whether it is a terminal illness like dementia or cancer, a chronic illness like MS or a crisis like a flood or even sexual or physical assault. I too see things as a gift, the good and the bad.…
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