When normal isn’t working…

This week I have thought I would never be able to keep up with blogging, and yes, I know I have cheated a little by adding some jokes and another light hearted one, but in fact, on Tuesday I published a second blog, not remembering I had already hit the publish button once that day.…

Dementia Red-alert

The increasing load of living with a person with the symptoms of dementia on the BUB (back up brain or carer). The experience of travelling is becoming more difficult, especially for my BUB. He remains on red-alert as my distress levels and confusion go up due to the crowds, the noise and the lack of my…

The emotional toll of letting go for a PWD

In a blog comment this week about me handing things over to my BUB, I responded with this; ‘I have had to give up a couple of things this week, and hand the responsibility over to Pete.’ I felt physically SICK doing this, and incompetent, and guilty having to do so… even though I know he…

Challenges for BUB’s

Recently my BUB (dear husband / back up brain) and I were discussing the impact of the constantly changing deterioration of my abilities, how it feels for him to watch it happening, and perhaps even worse than that, there is nothing he can do about it. Quite often he notices things before I do. I wondered how it is for…

Finding my way

A friend and newish follower of my Daily Digest has been lovingly overprotective of me the last few weeks since reading my struggles (thanks Deb xxx), kindly averting too much ‘volunteering’ work from coming my way from one organisation that has my heart forever. It reminded me of my husband the first couple of years after the…

Bugger!!!

This is my second blog post today, making up for a day I accidentally missed; I am feeling quite annoyed with myself because I didn’t actually post the blog I wrote for Saturday 18th August! Yes, I know, my mantra is, Did anyone die? And if not, then it isn’t really a problem!!‘ It doesn’t always…

Why speak out?

Richard Taylor gently reminded me yesterday of the Abraham Lincoln quote, about only pleasing some of the people some of the time. Thank you. I feel vaguely fragile after another week of taking deeply personal risks by speaking out honestly and receiving more rebukes or disagreement with the way I feel about things. My dear…

Back Up Brain vs Carer

Recently I gave a second nickname to my DH (dear husband!), which is BUB, or Back up Brain and we find this terminology far easier to live with than carer. We think of a back up brain as being the same as the hard drive in a computer. He said recently, it empowers him to be by my side and with me,…