Giving a shit is really what I’d have liked to used in the title, but I was trying not to be rude… Oh well, I’ve now failed on that front too!!! People with dementia need a lot of encouragement to keep going, to keep aspiring for change, to stay energised as advocates for themselves and…
Living with, and being an advocate for others also living with dementia is one full of highs and lows, and I wrote the following sometime before 5 May 2014; I’m feeling distressed, wondering if the advocacy results I’m trying to achieve is worth it. Not so much worth the outcomes, for people with dementia, but…
As our time in New York comes to an end, we have discovered a few new things about living with dementia. Whilst I have managed to post two blogs since being away, and a few photos onto Facebook, they do not tell the true story, and in some ways have been a cover up for…
When a person with dementia ‘comes out’ about their diagnosis, and openly admits they are living with the symptoms of, and diagnosis of dementia, there are a number of reactions and responses. The person with dementia (PWD) is thrown into complete turmoil; anger, ‘why me?’, surely it can’t be true, let’s get a second opinion,…
This morning, I was sure I posted a blog titled; Melatonin and Exercise Help in Alzheimer’s Disease. However, it has ‘disappeared’; I’ve just tuned in to do some work on one of my drafts, and simply cannot find it. Of course, it must be ‘user error’ that has caused its disappearance, but if anyone who gets my blogs…
Having lost my mother in law to ovarian cancer in 2005, it was a sad first Christmas without my father in law. I can recall his and our tears that first Christmas without her. We spent it with my parents, partly because they are elderly now and we are lucky to still have them, and partly…
Wishing you all a wonderful day with your families and friends. I hope the day is filled with more love than you have ever felt, and creates memories you will always remember. Take lots of photos and videos just in case! For those of us living with Mr Dementia in our families, may he take a…
The following is a reflection I wrote after my first piece of writing done for a university writing course, writing about a place, and I chose to write about the new place I was in, living with dementia, which ended up being published: “I have chosen my newly diagnosed dementia as a place to write…
My dear husband and I constantly discuss our days and the things going on around us, but so often now I have increasing short-term memory loss, so that often it seems like life is full of surprises. He says, but we talked about that last night, or we did that or we went there this…
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