In NursingTimes.net by Anne Cooper, 4 April 2011.
Patients are most definitely the experts in their condition or disease… this article you can read in full via this link, is from 2011, but has some great messages, least of all, this one:
Finally, I want healthcare professionals to respect the fact that I have lived with diabetes for 30 years and, so, in that time have quite a level of expertise in my own right and that they shouldn’t feel intimidated by that but thankful and look to being my partner in care, not the headmaster!
It is obvious the services and support for people with diabetes, even back in 2011 were and are far more advanced and supportive for living well with diabetes, than services and support is now for people with dementia. I will keep speaking out until that changes, or until I die… whichever comes first.