Recently I blogged about 17 things not to say or do to people with dementia, and have revised and reconsidered this list, to be published again soon. However I thought today I’d publish the list of 10 Dignity in Dementia Care Principles in use in SA Health. Dignity in Care was first launched in Australia in…
One of my newer and very dear friends Beth Britton from the UK who writes a blog called D4Dementia and recently wrote Advocacy and dementia – A vital partnership. She is a campaigner and consultant, writer and blogger, and her dad had vascular dementia for approximately the last 19 years of his life. Her blog…
This is the trumpet call of a friend and fellow member of Dementia Alliance International, Mary_Beth Wighton, which is almost like a digital poem, the second reason for posting today… enjoy, and if you have dementia and are not already, please think about becoming an advocate.
This is the latest blog for Dementia Alliance International, featuring Susan Stephen talking about living with PCA. The following information about PCA is from the Alzheimer’s Association (USA) and I decided to include it on this blog as it is a rare form of dementia many people know very little about. About Posterior Cortical Atrophy…
Yesterdays blog has seen me get some terrific support, some criticism, and also a lot of people asking to share it. It started as a Creative Expression project for uni, and has been extended and added to since I began the list. My lecturer has asked to use in her courses in the future, with…
1.Don’t say, ‘but don’t look or sound like you have dementia’ 2.Don’t tell us we are wrong 3.Don’t argue with us 4.Don’t say ‘remember when…’ 5.Don’t call us ‘sufferers’ or ‘victims’ 6.Don’t say we are ‘demented’, ‘demented sufferers’, ‘fading away’, ‘disappearing’, have a ‘dementing illness’, an ‘empty shell’, or are ‘not all there’ 7.Don’t say…
Well, it is time again for Tuesday humour, which I’ve forgotten about lately, or not been able to blog like last week. This Tuesday, the joke is on me… A few days ago I was telling my dear husband how many blogs I had published since starting, and he said, “When you get to 1000,…
There has been a lot of noise on social media and other places about the use of the word ‘sufferer’ in the last few weeks when referring to a person with dementia. Last week, I received a reply by someone willing to change the term to a person diagnosed with dementia, with acceptance and grace.…
A friend’s husband Chris who had been living with younger onset dementia died at 1 o’clock this morning, and there is pain and grief inside my heart for his wife, a dear friend of mine and their family. May the proverbial trumpets blow loudly for him this week and at his farewell. The trumpet is…
It is twelve months today Since a dear friend called Michael left us He was gentle and loving Perhaps the most Forgiving and compassionate man I have ever met My Nelson Mandela Eccentric of course But just enough to be adorable And a big bit funny Those of us who had the honour To know…
The third blog in the weekly series of Dementia Alliance International is Richard Taylor: Alzheimer’s from the inside out, what I have learned in 10 years. As I’ve missed a week of blogging, and it is Dementia Awareness Week in the UK, I thought I”d publish two blogs today! What Richard teaches us is profound,…
In an interview for theguardian.com Fiona McFarlane said: ‘I wanted to explore dementia from the inside’. This is the article, as published recently under Australian CUlture Blog in the Guardian. “Shortlisted for a Miles Franklin award and writer in residence at Sydney Writers’ festival, the author says she is living the literary dream. At 36,…
Well, hello there, long time no chat!!! Last night we arrived back in Australia from six nights in Port Vila (Vanuatu), and as this image suggests, most of the time it was overcast, and also, raining. It is tropical, so warm as well, and luckily for the bride to be, the rain, wind and clouds disappeared on…
I’m re-blogging the second blog posted by Dementia Alliance International yesterday, Introducing DAI at the recent ADI2014 conference as I am very proud of my colleague and friend, also co-founder and co-chair of DAI, Jan Pitts. Please swing by our website to read Jan’s full presentation and see her power point slides. Here is her presentation, now on our…
How to Be a Writer: Hemingway’s Advice to Aspiring Authors by Maria Popova “As a writer you should not judge. You should understand.” Ernest Hemingway has contributed a great deal to the collected advice of great writers, from his famous admonition against the dangers of ego to his short and stellar Nobel Prize acceptance speech.…
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