The funny thing that happened whilst we were away is that I discovered my husband playing some ridiculous war game on his iPad. I’d forgotten he’s always loved playing online Solitaire and other games, and used to play XBox games with our boys. Now, you might ask, why even bother to write about this, but…
My computer and access to the internet as a place where I don’t have to worry about paddling so hard, a place where I can take as much time as I need to work things out, and where I don’t feel embarrassed when I can’t remember, or can’t get out the right words. IT truly…
This is an important blog written by Dr Shibley Rahman, with commentary also well worth reading. I too am concerned about our communities being called ‘Dementia-friendly’, and as Shibley said recently, there is no way it would be acceptable to say we are becoming ‘Black-friendly’. This is similar to the analogy I use for conferences…
It is a year for dreaming A time when we can feel Real change in the air Many moments of unrest And disillusion Interspersed with excitement Dreams turned into a reality The Dementia Experts Speaking out for themselves and for Other people with dementia T-shirts for supporters Asking them to See the person, not the…
During the recent ADI2014 conference, it was apparent the language being used by researchers and other presenters to refer to people with dementia is still very derogatory, stigmatising and discriminatory. Now really, do any of these people look like they are suffering, or like they are victims?! It looks more to me like we are…
Living with, and being an advocate for others also living with dementia is one full of highs and lows, and I wrote the following sometime before 5 May 2014; I’m feeling distressed, wondering if the advocacy results I’m trying to achieve is worth it. Not so much worth the outcomes, for people with dementia, but…
I’m very happy to say we have landed back on Aussie soil, and although I’m still in Sydney airport, with a 2 hours wait for the flight home to Adelaide, I thought I’d better catch up on some blogging! To say we have had a frantic time is probably the understatement for the decade (for us),…
Who’d have thought I’d be involved in such a thing Motivating conference attendees to start tweeting Spot the long suffering husbands Sitting in the ADI2014 conference auditorium Waiting patiently for rowdy wives to do their session Social media for improving dementia care Helping to increase the revolving doors between Researchers and patients That treacherous and…
Last year when my tweeting became a bit more frenetic, the time I was tweeting, that is, around 5am Adelaide time when I am often up, meant I could quickly connect with my friends overseas, and so, they started to set their clock by my first tweet, and nicknamed it #SwafferTime!!! Since travelling and also…
As our time in New York comes to an end, we have discovered a few new things about living with dementia. Whilst I have managed to post two blogs since being away, and a few photos onto Facebook, they do not tell the true story, and in some ways have been a cover up for…
Life in the gym – my darling husband has gone to the gym in our hotel this morning, and I probably should be there with him, but decided chatting on Facebook, twitter and writing a blog would be more fun!!! When I was young and playing a lot of squash, life in the gym used…
Thanks to Dementia Care resource and training network for alerting me to this terrific website. AFTD Creates Website for Kids Dealing with Rare Dementia PHILADELPHIA, April 23, 2014 /PRNewswire-USNewswire/ — Isolation, confusion and fear characterize the experience of children in a family where mom or dad has been diagnosed with frontotemporal degeneration (FTD), a rare, young-onset…
We’re heading to New York City today, having a short holiday before attending the Alzheimer’s Disease International Conference in Puerto Rico. It seems a bit lazy adding another video clip from YouTube to my blog, but a girlfriend sent this to me yesterday, and it is truly INSPIRATIONAL. It shows that dancing might actually be…
Welcome to Tuesday! This is not specifically humour, but is a sweet video of a friendship between a cat and dolphins, found on AnimalPlanet Channel on YouTube. If only life was this simple…
On Friday I posted an honest Easter reflection, in part about losing my Christian faith. I have already been judged by some people I know, a couple to the point of saying they admire the work I do, but have now lost respect for me because I don’t believe in ‘their God’, and I quote,…
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