Tony’s story

Tony’s wrote; …….I always thought that A/D was something that happened to all old people, we all went a bit silly in our senior years, I had no idea how wrong that perception of mine was, and in early 1990, a life changing, head on car accident changed my world and my life completely…..I suffered…

Jennifer’s story

Jennifer Bute from the UK has become a wonderful friend of mine; we met at ADI London last year, and like me and Richard Taylor, she is fighting the symptoms of dementia as if it is the Olympics race of her life. Dementia from the inside is her story; Jennifer Bute. She is using her…

Living outside the stigmas and expectations of others

Recently Richard Taylor  wrote to the following message to a person with younger onset dementia living in Queensland who had connected with him via his website; “Thank you for taking the time to write. Have you met Kate Swaffer? She is a kindred spirit, who also lives in Australia, of ours who hears the same…

Two sides of the dementia coin

In conversations this week, whilst holidaying with a dear friend in Queensland, it has been unsettling to hear my friend say she can see my decline, however subtle it is, and no matter how much I attempt to hide it.  We have known each other long enough, and well enough for her to be honest,…

Christmas, grief, dementia and remembering

Having lost my mother in law to ovarian cancer in 2005, it was a sad first Christmas without my father in law. I can recall his and our tears that first Christmas without her. We spent it with my parents, partly because they are elderly now and we are lucky to still have them, and partly…

Richard Taylor

Dear Richard, You have been my shining beacon of light since my diagnosis of younger onset dementia. My Google and I were best friends for the first few weeks as I searched for information about dementia, and for help. Any form of help, as there seemed to be none out there, and I had not been…

Drowning, paddling harder and staying afloat

Many days it feels like I am drowning from the symptoms of dementia, and last night my husband and I were talking about the changes that are taking place again, and the fear we both feel when I might not be able to keep myself afloat. It is not the most comfortable emotional journey, constantly feeling like…