Writing about dementia

A blogging friend wrote to me privately on 6 June… “I stay away at times because I just find it very difficult to read about death a lot and all of the terrible down effects of Dementia. When I first started out at your inspiring blog way back when you were in a very different space.…

Understanding Dementia | Free online course

As my blog becomes more exposed, so do I! The wonders of the internet, and having global networks and new friends never ceases to amaze me, a farm kid who spent the earliest part of her life without electricity or running water. I’ve become slightly involved with some delightful researchers from Tasmania, and at their request,…

Protected by a ninja

More homework funnies, reminding me of my children in primary school! There were many days at university I wished I had a ninja to protect my answers!! In fact, I wouldn’t mind one now…

Dementia teardrop

 Teardrop t e a r d r o p . a tear falls upon her cheek then another and another there is nothing she can do no end to the tears inside her heart the expression of her deep sadness her mind awash with fear and the dread of the internal drought that is to…

Sunday poem: Love

Love Waiting with open arms Watching out for you Standing still in the breeze Sails through your heartstrings Electrifying anticipation The tempest of your heart It blows over You feel lost Your love is in the wind

Saturday poem: Life

  Life It begins with a sexually transmitted act And, it is a terminal disease Some days it gets in your way Ebbing and flowing its own direction Sparing little regard to what you had planned It wanders along a winding road Allowing you to hold the rudder If only you will Begging you too steer the…

Go for peace and joy…

I’m lucky enough to be going to see and listen to His Holiness the Dalai Lama this afternoon… The message with the image opposite is often a very challenging thing to do, as  it really is easier to blame something or someone else for your troubles. However, in my experience, the best peace comes from doing exactly…

Advocacy as an intervention for dementia

Yesterday I placed an updated list of interventions I use in an effort to delay the progression of the symptoms of dementia. This list evolves as I try new things, or as new symptoms appear and more specific interventions are needed. In many ways it is no different to modifying equipment for someone whose physical…

Interventions for dementia

The use of pharmacological interventions for dementia excludes at least 50% of everyone diagnosed with dementia, and until very recently, researchers, service providers and the medical community have offered NOTHING to those of us where medication is not available. Thankfully, the tide is turning. On Sunday night Christine Bryden featured in a story about dementia…

Tuesday humour: homework

I realised after posting my blog the last few Tuesdays I had forgotten about this new theme, so have been searching the recesses of my books, notes and numerous brains (BUB, and others) to find something to write about that is even remotely humorous, and possibly a welcome relief from the relentless sadness of the last few weeks.…

Talking about death brings end-of-life benefits | Rock Center

Talking about death brings end-of-life benefits Rock Center   |  December 06, 2012 It’s one of the most important conversations a family can have, yet so many families fail to have it until it’s too late. Rock Center’s Harry Smith goes to a Wisconsin hospital that has its patients talking about the inevitable: death. In the process…

Thinking for ourselves

This fabulous quote was on a blog I follow called Lateral Love Australia, and ‘the Co-Founder and Director, Nicola Butler, is in a joint endeavour with the head of her family, William Brian Butler, holding steadfast to the sentiments of Martin Luther King Jr. “The time is always right to do what is right”; the movement…

Saturday poem: Friendship

Friendship The bonds of friendship waver tenderly in the wind People who come into our lives for a reason, a season or a lifetime Never knowing which one they will be, or which one we will be Waiting in the wings to share our dreams, our lives, our losses Stepping in when they see us…

Dementia and children

This last week was the third funeral of a younger person with dementia. I only knew Deb in the mid and later stages of her disease, but have become very close with her husband Fred, who has been one very amazing husband and BUB for his beloved. Sadly, Deb had to live in aged care in the…

Australian Dementia Advisory Group

I’m a bit late posting this, but it is official, Alzheimer’s Australia are seeking people with dementia to be part of this group. We are hoping to have all states represented, older and younger people with dementia involved, and people from our Indigenous and CALD communities. Please forward this across your networks if you live in Australia. Alzheimer’s Australia’s…