When a person with dementia ‘comes out’ about their diagnosis, and openly admits they are living with the symptoms of, and diagnosis of dementia, there are a number of reactions and responses. The person with dementia (PWD) is thrown into complete turmoil; anger, ‘why me?’, surely it can’t be true, let’s get a second opinion,…
Yesterday I nominated for the Best Australian Blogs 2013 Competition. These are the instructions I have been given thus far: Let everyone know! √ The competition hashtag is #bestblogs13. Let your readers know via your blog and Twitter so they’re ready to vote for you in the People’s Choice Award round. √ Here’s what’s happening with the…
In a blog comment this week about me handing things over to my BUB, I responded with this; ‘I have had to give up a couple of things this week, and hand the responsibility over to Pete.’ I felt physically SICK doing this, and incompetent, and guilty having to do so… even though I know he…
Recently my BUB (dear husband / back up brain) and I were discussing the impact of the constantly changing deterioration of my abilities, how it feels for him to watch it happening, and perhaps even worse than that, there is nothing he can do about it. Quite often he notices things before I do. I wondered how it is for…
Jeff Goins writes a great blog, and I often find what he says about writing and blogging, and finding your voice and tribe is incredibly valuable. With his permission, my blog today is the three lessons he has learnt from having a tribe, which does not appear on his blog but arrived in his e-newsletter recently. What I…
Yesterday a fellow blogger Patrick Fisher awarded me with the Very Inspiring Blogger Award. THANK YOU. Patrick is helping his mum look after his father, who was diagnosed with dementia in 2008, the same year I was. Thank you once again Patrick, and keep up your wonderful and inspiring work, and your blogging. Your Dad, and your Mum,…
Wishing you a fabulous weekend… I have just noticed my blog post was not done (thought I’d posted early this morning!), and now I can’t find the drafts, so here is a delightful video for you to enjoy.
It was an exhausting few days, but very valuable and I feel more confident things will change. Not only for people with younger onset dementia, but for everyone with dementia. As we collectively work on eradicating the stigma and discrimination, though awareness campaigns and speaking out in general, the wider community will ultimately have no choice but…
I am reblogging this entire article because it is incredibly exciting news, and the first of many positives that now seem possible. It was a fabulous piece of tangible evidence of reform to begin the summit with. Hiring now! Published on Tue, 19/03/2013, 02:02:15 By Yasmin Noone Alzheimer’s Australia is on the hunt for 40 qualified individuals to become…
Younger onset dementia: a new horizon? 20 March, 2013 People living with younger onset dementia today released a report “A New Horizon?” documenting the unique challenges faced by the 24,000 people living with the condition and outlining how the National Disability Insurance Scheme (NDIS), and other funding systems including health and income security, should respond. The…
As I type, Richard is probably under the influence of anaesthetic drugs and the robotic arm at the Methodist Hospital in Houston, Texas USA. He will spend 6-10 hours on the operating room table with a six armed robot surgery machine named Da Vinci. As most of you already know he just completed a month of chemotherapy,…
Word finding, as a blog reader gently reminded me, is more a case of word retrieval. Her comment yesterday ended with this hilarious quote; ‘If I had a second brain it would be lonely!’ I often say, ‘the lights are on but no-one s home.’ But enough of the fun stuff! Word retrieval or word finding is…
The creator of Moving your Soul asked me to reply to a question from one of their blog followers; ‘I would like to know about your symptoms at the beginning of your process before the diagnosis of dementia’. It started me thinking… and revisiting this time in my life, and the impact of not being able to…
Learning to listen by Graham Stokes Posted by Moving your Soul the 9 October 2012 in categories Listen , Dating and scientific notes Re-posted here with permission. People with dementia have things to say and say. Unfortunately, his words invariably hide who they are and what they want. So one of the goals when working with…
A ‘feel good’ Friday! Thanks MW for the link.
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