I am reblogging this entire article because it is incredibly exciting news, and the first of many positives that now seem possible. It was a fabulous piece of tangible evidence of reform to begin the summit with.
Hiring now!
Published on Tue, 19/03/2013, 02:02:15
By Yasmin Noone
Alzheimer’s Australia is on the hunt for 40 qualified individuals to become the faces of the new National Younger Onset Dementia Key Worker program, designed to give people living with younger onset dementia, their families and carers a primary point of contact.
The new positions, announced by the consumer peak organisation and the federal government late last week, will be helped along by $16.8 million of Commonwealth funding spread over more than three years.
The soon-to-be hired key worker staff will aim to help families of people with early onset dementia to develop strategies that will enhance their engagement with support and care options by providing direct services and linking them into relevant services.
Successful applicants will work with people with younger onset dementia using a person-centred approach, to help them access the care and support services they need.
“This new and innovative program will enable younger people with dementia to access better coordinated care and support,” CEO of Alzheimer’s Australia, Glenn Rees, said.
“Support will be individualised and person-centred, which will also help to improve the quality of life for people living with younger onset dementia, their families and carers.”
“They will also be an important point of contact during the roll out of the National Disability Insurance Scheme, ensuring that people with younger onset dementia have access to the assistance they need.
“Alzheimer’s Australia is committed to working hard to ensure that many of the 24,000 people living with the condition will reap the benefits of this new program.”
The younger onset dementia key worker positions are available in a number of metropolitan and regional areas across Australia in both full-time and part time capacities.
Minister for Ageing, Mark Butler, has thrown his weight behind the recruitment drive campaign, calling on “40 extraordinary Australians driven by a passion to support some of the most vulnerable people in our community,” to apply for the new positions.
“Many people with younger onset dementia and their families struggle to navigate a service system they hadn’t previously expected to need for decades,” Mr Butler said.
“This program will give people living with younger onset dementia, their families and carers a primary point of contact to help them find services like community based care and social support.”
The Younger Onset Dementia Key Worker Program is part of a $23.6 million investment by the Australian Government over five years to improve support for people with younger onset dementia.
There are about 24,400 people in Australia aged under 65 with younger onset dementia, out of a total 321,600 Australians of all ages estimated to be living with dementia.
About 1.2 million Australians are caring for someone with dementia.
Garry Lovell, a person living with younger onset dementia, said that the roll out of the program can not come fast enough.
“We often face very different challenges and have very different needs to those that develop dementia over the age of 65,” Mr Lovell said.
“I am hopeful that the Key Workers will provide some relief by helping us navigate our way through the health system.”
The younger onset dementia key worker positions are advertised on the organisation’s website. For more information, visit www.fightdementia.org.au

Nearly half of the nation’s bill for both elder care services and home care those who
drop out. As long as your loved one, it may be necessary to think
about getting them help.
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I hope the funding doesn’t stop after the 3 years has finished. It’s something that the government is very good at doing. Not following up on things that they start.
I hope that they will be taught that there are over 100 different diseases that are included in the definition of dementia …..
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Good point, although I do think this will stay with us, as well as more funding on its way. And they do know the full impact and the fact there are about 100 different types of dementia. Alzheimer’s Australia, and a number of us who volunteer our time on national committees make sure of it!!
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I certainly hope you are running this group Kate! You should be in a head position after all you have given to this subject! I want to read your name in bold print 🙂 You did sign up didn’t you? Go for it! BTW, has anyone looked into WHY Au has so many early onset dementia patients? Seems kind of strange to me….Blessings…VK
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Thanks for your support VK. For sure, I won’t be running this group, or applying for the job!! I am needing to access more support, but can still work as an advocate; far better to let a person who is trained in all areas required, and who can also drive to take on the job.
Regarding the stats, I suspect it is the same world wide. I have looked up the stats in the USA and about 5% of people doiagnosed with Alzheimer’s disease there have younger onset AD – approximately 200,000 people. I’m currently comparing stats worldwide, so will write a blog about it in time!
Blessings and love to you too…
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I would apply immediately if i’d live in Australia. Let’s see how long it takes NZ to catch up. Good work Kate! I am reading your blog every day with much interest.
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absolutely fantastic news !! I will also reblog
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well done and congratulations on all your hard work, your first hand knowledge has paid and is paying off, you go girl, yes as jenny russell stated are you able to apply for said job for the adelaide region??? certainly hope so as you dont like to sit still but if you do just in your own time. Once again darling one am so proud of you as always, we are in town on the sat 13th. so hope to stay or even just a catch up will email you later with details. to the moon and back xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
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What exciting news! I couldn’t believe that money has actually been allocated and that 40 special individuals are to be recruited. What an achievement! I expect they will be inundated with requests for support and guidance. I hope that these people are spread equally across the country Are you able to apply……..you would be brilliant 😉
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excellent! Part of your legacy no doubt x
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