Lost to dementia or WordPress?

A couple of weeks ago I ‘lost’ a blog post, and the day after I asked for someone to tell me if they had received it, and thankfully one lovely friend (DR) sent me the email she received into her Inbox, so I actually have proof of it!! But where the hell did it go, and…

What is a ‘good life’?

Jane S recently asked: “Kate, if you don’t mind me asking, I would love to hear your perspective on ‘a good life’ … what gives meaning to each day now? what gets you up each morning? what are the places, past-times and people who remain key to a good life? At the heart of my wonderings…

Alzheimer’s Speaks Radio

Today I am talking to Lori La Bey rather than writing on my blog… I have failed to embed the direct link, so you can listen to it here: Alzheimer’s Speaks Blog or here on blogtalkradio Thanks Lori for having Rawad Sheikh and I on the show!

Response to yesterday

The responses to yesterdays blog were thoughtful and insightful, thank you. You have given me some wonderful ideas and lots of food for thought. Rather than responding to you individually, I decided it was a good ‘topic’ for todays blog! Vanessa – I agree, it is important to just keep saying it. My message about what it…

The therapeutic value of writing

I’ve been thinking of stopping my daily digest, and changing it to a weekly or monthly newsletter, a bit like my dear friend Richard Taylor. The problem for me with that is it will remove the daily discipline of having to use my brain – the neuroplasticy workout, and I suspect reading a whole week or…

Dementia, madness and neuroscience

In many of my presentations, I say; “The changes brought on by dementia are relentless, yet most people don’t see them as disabilities just as external symptoms. Many also think it is a mental illness, which it is not. The word Dementia is taken from Latin, originally meaning “madness”; no wonder we struggle against the…

Younger onset dementia: a new horizon – national summit

Younger onset dementia: a new horizon – national summit Consumers and service providers coming together to create solutions for improved access and choice. Be inspired by National and International speakers who are leading the way in best practice for younger onset dementia service provision. Hear directly from people with younger onset dementia and their families…

Mary Beth Wightons story

Carpe Diem – Living Life to the Fullest My Story I’m often asked if I can pin-point when the dreadful disease of Frontotemporal Lobe Dementia (FTD) slithered into my life and began to attack my brain. I don’t know. When I look back, it was about the year 2007 when I began to make serious…

Dementia: My Story

The following short digital story is on YouTube, and the link to it is also somewhere on my blog. I produced it for a university course not long after my diagnosis of dementia. It is not meant to be Ageist; when my father in law saw it, he felt exactly the same. It is not meant to…

I’ve started wandering…

My days are starting to look a bit like this! I do a lot of walking around in circles, up and down the stairs to the bedroom, back to the office or kitchen, wondering why. If I was a resident in aged care, I would be labelled as wandering, rather than a person simply looking for something…

A bright idea…

“Just do 10 minutes if you don’t feel like training and you will find you rarely only do the 10 minutes” Apply this to anything you find difficulty doing, and I’m sure it will work. You will find yourself doing more than the 10 minutes, and get some of those tedious jobs [like tidying my…

Tony’s story

Tony’s wrote; …….I always thought that A/D was something that happened to all old people, we all went a bit silly in our senior years, I had no idea how wrong that perception of mine was, and in early 1990, a life changing, head on car accident changed my world and my life completely…..I suffered…

Yolanda’s story

Yolanda’s story was first posted on Global Dementia Voices, October 11, 2012 by Kate Swaffer. I felt it important to highlight the stories from that blog here, as it simply didn’t grow wings, and the stories of people with dementia, or illness leading to symptoms of dementia are important in teaching us all to better…