This was sent to me by a dear friend living in Queensland, and I wanted to share it here. Some days, music, dance or other recreational activities become the therapy and healing we need. Today is one of those days! Read the paragraph below FIRST before you watch the video & turn-on speakers. There is an…
Richard Taylor sent out his newsletter today, and bravely disclosed : “He is “a person living with the symptoms and diagnosis of dementia. I am now also Richard, a person living with esophageal cancer. It was discovered last week, “staged” this week, and I am working with three physicians on a plan on how to best…
I follow a few writing blogs, and Live to Write – Write to Live is one of my favourites. A blog on this site written by Diane MacKinnon, Dialogue With The Internal Editor really sparked my writing mood and practice, and makes good sense. Yesterday I wrote about dementia, drowning, and paddling like a swan…
Many days it feels like I am drowning from the symptoms of dementia, and last night my husband and I were talking about the changes that are taking place again, and the fear we both feel when I might not be able to keep myself afloat. It is not the most comfortable emotional journey, constantly feeling like…
Prescribed Dis-engagement: what is it? Following diagnosis, my specialists all told me ‘to give up work, give up study, and go home for the time I had left’! I quickly termed this prescribed disengagement, and thankfully I eventually chose to ignore it. Why is it that one day I was studying a double degree, working full…
Continuing on from yesterdays blog, which was from my presentation yesterday, it has been my experience that often others feel threatened when people express their need or desire for change, especially if it is to service providers or policy makers. In this case, I am talking about PWD. There is no need to feel threatened, as it is merely an…
Today I presented at a forum, Younger Onset Dementia: A time for change, and my presentation was titled ‘The unique challenges of younger onset dementia’. Sometimes when I suggest things might need to change, there can be a backlash, but with the title of the forum being what it was, I decided I would be among friends and…
Recently I was introduced to a Spanish woman, Susana Garcia who has been involved in setting up a blog Moving Your Soul, by Kay Bransford. Susana and I stay in touch via email, and she has sent me a video made about family’s experience of living with her father who has Alzheimer’s dementia. It is profoundly and…
I was going to add something to this article from the DPS News rather than simply re-post it, but feel it is all I need on my blog today. Hopefully it will open up the conversation about death and dying, and give many of my readers who are pro-euthanasia something to think about as an alternative. I must…
I’m adding the latest e-newsletter from the Dulwich Centre, highlighting the many events and activities about Narrative Therapy coming to Adelaide next year. I recently did a 5 day introductory Narrative Therapy course with them, and was surprised to find people from all over the world had flown in especially to attend, from countries including…
November is the month for National Novel Writing Month, or NaNoWriMo and I bravely (stupidly??!!) signed up to give it another go this year. I am way behind the 1600 words per day they suggest you write to keep up, but if I get all my other writing finished by the middle of next week, I’ll…
What I write is merely what I am thinking at a given moment, my opinion or thought or feeling about something at a particular time. It is fluid, and may change, even a moment or an hour later. You may agree with it, or disagree. You may care, or not care, but if you read…
Published this week in DPS News was another inspiring article. Dementia: power of touch Wednesday, 14th November 2012 In Health & Wellness “A new approach to caring for people with advanced dementia is improving the quality of life for those who can no longer move and have limited capacity to communicate. University of Western Sydney…
This is another re-blog, but an important one to any readers in Victoria, and I have copied the complete article published in DPS News, Thursday, 15 th November 2012 in Health & Wellness, Aussie drug may ‘reverse’ Alzheimer’s; “An opportunity to “stop Alzheimer’s disease in its tracks” may lie in a Victorian study to trial…
Today I wanted to reblog an article by Jami L.Hede, M.S., CCC/SLP Dementia Myths Debunked from her blog Exploring Dementia. There are still so many myths out there, and I regularly have staff who work in aged and dementia care ask me Is Alzheimer’s dementia, which was why I wrote that article a while ago.…
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