Big life, small suitcase

Kate Legge wrote a piece in The Australian, March 10-11 called ‘How do you shrink a big life into a small suitcase?‘ It was around the same time I had an article published in the Australian Journal of Dementia Care called ‘Human rights in residential aged care: a consumer’s perspective‘. The two articles look at…

Dementia and the ‘Yes’ word

When my father in law was alive, we noticed he said yes to almost everything, or nodded, or agreed with us when we were together. He said yes to the staff too, even if a yes or no answer was not the required response. It eventually became obvious he was saying yes because he didn’t…

Dementia: My Story

The following short digital story is on YouTube, and the link to it is also somewhere on my blog. I produced it for a university course not long after my diagnosis of dementia. It is not meant to be Ageist; when my father in law saw it, he felt exactly the same. It is not meant to…

Dementia, aged care, death and drugs

There has been a lot of press recently in Australia about the overuse, and abuse of the use of antipsychotic drugs in aged and dementia care, and rather than reinvent the word-wheel, my blog today is to link you to a couple of articles.   Premature deaths linked to drugs in nursing homes Up to…

Dementia, Aged care and Well-ness

This last couple of weeks seems to have been getting information about the meaning of Well-ness, and how it applies to people in aged and dementia care, a worthy topic for my blog. The three sets of questions below come directly from the PDF in the Dementia Care News blog, Measuring Wellbeing: Practitioners’ Guide (NEF).…

Ranting, human rights and help required

Often ready to have a good rant, and then encouraged by friends, I have now set up onebigrant You may wish to join me there?! Karen will be a guest author or responder if I can ever work how to set that up. Eliza, you might be able to help me, as I know you…

Dr Martin Luther King Jr asked ‘Is it right”

Zen Gardner posted this interesting article Don’t look for answers – find the questions and in it I found this wonderful quote by Dr. Martin Luther King Jr, “Cowardice asks the question, “Is it safe?” Expediency asks the question, “Is it politic?” And Vanity comes along and asks the question, “Is it popular?” But Conscience…

Dementia and Amway

Don’t let dementia become your capricious mistress, something the rest of your life (and that of your family) has to compete with. Don’t live the life of an exile, limited to the symptoms of your or your loved one’s symptoms of dementia. Focus your attention and energy instead on what you have left that is…

Aged care vs Palliative care

“The greatness of a nation and its moral progress can be judged by the way its animals are treated” Mahatma Gandhi As I speak out about improving the services for, and care of people in aged care, and people living with dementia, I am constantly scratching my head wondering why we haven’t got it right…

Is Aged Care truly Multicultural?

Last week I attended a HACC Innovative Project Strengthening Communities Brighter Futures Committee meeting, the project of two aged care groups that I have been involved in as a consumer. During this meeting, I had an epiphany about the aged care services being provided to non Indigenous, and non multicultural Australians, that is, white Australians…

Younger onset dementia and Aged Care Accreditation Standards

I am a 53 years old female. There is NO age appropriate residential facility or age appropriate respite available for me in the state in which I live. If I need to enter an aged care facility, I consider the site will be breaking no less than ten (10) of the Australian Aged Care Accreditation Standards, because…

Dementia and Incontinence

Living with incontinence is difficult, no matter what age you are. I have urge incontinence, probably a side effect of either the brain surgery I had in 2005. There is nothing mechanical going wrong that can be repaired, I simply don’t ever receive the messages from  my brain to tell me I need to go. I published…

Human Rights, dementia and the elderly

ALL Australians are meant to be protected by The Universal Declaration of Human Rights, a wonderful document one that took many years to design, and to get countries to agree to. However, it seems not to apply to the health and aged care system in Australia. When we look at this declaration, we fall short…

Pressure to perform

Today, I was feeling brain drained and not up to writing a blog, until I found the following responses sent to me by someone I have met who works in aged and dementia care. I have kept up with your ordeals of late and also read Jane Sherwin’s response in congratulating you for speaking out…