Kate Legge wrote a piece in The Australian, March 10-11 called ‘How do you shrink a big life into a small suitcase?‘ It was around the same time I had an article published in the Australian Journal of Dementia Care called ‘Human rights in residential aged care: a consumer’s perspective‘. The two articles look at aged care, mine telling some tales of woe, hers telling of the good experience she has had with her father. The positive stories are few and far between, and I’ve been wondering why. Perhaps because of her career [journalist], their experience has been better? After all, it would be rather stupid for an aged care provider to provide poor care if they thought it might get written about publicly.
So how do you pack a lifetime into a small suitcase? I was confronted with this when I packed a suitcase of personal, and special belongings of my friend Michael who passed away last year, to take to the UK to his family. I found this incredibly difficult, selecting items from his 57 years to pack into a suitcase. His family had requested some things, but as we went through his home and belongings before the trip, and to empty the house for sale, we came across various other items we felt belonged with his family. As I lifted the small suitcase at the airport for weighing and loading for the trip, the fragility of life struck me, and the visual of an actual suitcase, full of a very big life was overwhelmingly sad.
When we packed up my father in law’s home, and packed his life into a suitcase to enter aged care, it was confronting, and sad, and he hated it. Every single day, he said he felt locked in prison. Every single day I felt as if I had been his jailer. My mother in law died in her own home, and I suspect this is the greatest gift we ever gave her, as at the time we were able to support dad and nurse her at home. When she left their home, dad would not allow the funeral home staff to cover her face, and she headed off into the sunset, with the wind in her hair, from her own home. No need to pack her life into a small suitcase, and not once did she have to endure the feeling she had been locked in jail. I’m glad Kate Legge has been able to tell of a good and positive experience in aged care, but I do believe she is still in the minority.
Having been advocating in this sector for a few years now, I have made many friends and colleagues who are working really hard to improve things in aged and dementia care, and I applaud them. They are working against the odds; low wages, complicated funding bodies, state and Federal government changes, and the challenge of providing good food, interesting activities, staff who really care, and who have been appropriately educated, can speak English, as well as provide translator services for their clients who don’t speak it, and so on. In my state, they pay staff at the Zoo to clean out the crap in the animal cages more than they pay our carers!