Blogging: an antidote for dementia

On Wednesday 28 May, 2014, my blog had it’s highest daily activity with 2,438 views and 1919 visitors. The stats page breaks it down further, saying it had 1.27 views per visitor. I’m not sure I know what the difference is between views and visitors, or what that last figure means either, but does that…

Barry Cohen speaks up about dementia care

Once again Cohen has spoken publicly about his experience of being diagnosed with Alzheimer’s Disease, and in aged care. The article was published online yesterday,and I watched his interview on the ABC last night. Apart from the interviewer referring to people with dementia as sufferers, it was insightful, oddly uplifting, and sad. I say uplifting…

Perspective…

Just in case you think you’ve missed the boat somewhere, sometime… Life is all about perspective, and these guys sure need a break! There are many times I feel like I missed the boat, or that life is too hard, or that I want to give up, or that having dementia is ‘crap’… But always,…

Behaviour Management vs Staff Management

Managing ‘challenging behaviours or ‘behaviours of concern’ or managing the symptoms of dementia is a regular topic at conferences and forums for major discussion, often one that drives me to distraction! After attending a forum for nurses and other health professionals in clinical practice recently, where at least half admitted to believing it appropriate to…

Love in the wind

Heartache Waiting with open arms Watching out for you Standing still in the breeze Sails through your heartstrings Electrifying anticipation The tempest of your heart It blows over You feel lost Your love is in the wind

Dementia and independence

Claire De Boer on her blog How Are You Using Your Words?  wrote when talking about a friend with mental illness from alcohol and drug abuse: “… I’ve felt like I’m scooping a baby bird with a damaged wing into my arms. She feels so broken. So fragile. I would like to be able to rescue…

My disappearing world

Days alone with dementia Laughter and love Tragedy and sadness Memory loss Playing cards alone Grief, tears, shock Humiliation and stigma Dancing Daring Keeping secrets Engagement and inspiration Hysterical and life changing Moments lost in time

Rehabilitation and dementia

I’m in the final stages of a subject on rehabilitation and dementia, and this Wordle was one of the last activities for our online weekly activities. It was wonderful to be learning a course that promotes rehabilitation for the elderly and for people with dementia, but it is curious it is not actually happening for…

There is big money in dementia

A few months ago, and for the first time in my life as a dementia advocate and speaker, it was not a pleasure to present at a conference, and it has taken me some time to recover emotionally, and to be able to talk more about it here. The final session of Day 1 of…

Garfield… one cool cat

He is the coolest cat there is… well, other than Boris! I flew into in Sydney late yesterday, and stayed in a hotel at Olympic Park, en route to Kiama for the next three days, and wait for it… a hotel with no room service, no dinner and no breakfast. Garfield would not like it…

Learning Life from Illness

I’ve had a bit to do with illness, and in my experience, it is the stories written by people who are sick, or have been gravely ill, including sick doctors, that are often the very best teachers of knowledge of how to care for sick people. They go beyond the medicalisation of illness and human…

Writers block

Since I have signed a contract for a book, I have had a minor dose of what I can only think must be writer’s block! I will definitely get it finished, and I have had a lot of very valid excuses not to complete it; for example, some other health issues, some deaths in our…

Tips for Dementia Care

I’ve been thinking about a few simple mantras or tips to improve aged and dementia care, and would love for others to add to the list, or improve on these tips or make other suggestions. It is easy to believe we are providing good care, but not so easy to listen to feedback that says…

Loneliness

A sense of loneliness So deep It takes my breath away Reminding me of those departed Lingering inside my heart Lost to the stigma of dementia Tales of despair Whisperings of days gone by Deteriorating abilities Sadness sitting just inside my soul Yearning for my loss of self Footnote: Through this blog, and other social…