Starting this blog was something random for me to do, however I now relish my time of thinking and writing. Mostly though, I am humbled by the amount of feedback I have received, the wonderful words of encouragement, and the honesty of your sharing. For those of you who are travelling the dementia footpath with me, my heart goes out to you, my love and prayers are with you, and I wish there was something I could do to help. My blog has filled me with showers of encouragement, wrapped me in lashings of global love, compassion and empathy, and is turning into a global conversation. I feel honoured others are interested in my journey. Currently it seems my dementia might be changing, as the memory lapses are worse, and more often, I am forgetting names and faces more, having a shower and dressing is slightly more complicated, the fatigue from functioning and thinking with dignity has increased, the blank moments are longer and more frequent. Sometimes I feel scared and concerned the future is changing more quickly than I want. My husband is feeling the same trepidation as he watches from the sidelines, looking at our future without any sense of knowing if what we are talking about doing, and planning to do next week, next month, or next year, will actually eventuate. He more than anyone, can see what is slowly happening. This does not mean I will stop living, but encourages me to push harder, love more, aim higher for patience and understanding, and plan more. It also motivates me to smell the roses more, call or visit my friends more often, read, sit quietly, listen to music, and slow down in between the activities and tasks. Living is what I call this, activities intertwined with good and bad, joy and sadness. It is what I do with the sadness and the challenges that really matter. We live until we die… so I will make sure my days of living are full of my best dreams.
