As the global world of dementia support grows, I have been following the journey and decline of Dotty and her son Bob DeMarco, who has given the world daily insights into their world of love and loss. The Alzheimer’s Reading Room also offers information about research, technology, Apps to help with brain training and memory and many other things, and Bob’s ability to keep sharing his and their world regardless of his own suffering has been extraordinary. I woke up this morning to read she has now passed away, and I salute him, and pay tribute to Dotty who has given her family so much love and insight through her own suffering; RIP Dotty I don’t personally know Bob, nor have I ever met Dotty, but I shed tears for them both, and for their families who will be feeling the sadness and loss of her passing. We are strangers, but none the less it is a shared journey, and through his blog, I have learnt a lot and wanted to share this news and pay a tribute to them both. As we have sat through the Alzheimer’s New Zealand conference, we have shed tears too, as we listen to speakers discussing in medical detail what is happening to us right now, or what might be ahead of us. Many speakers like Steven Sabat and Graham Stokes have been profoundly insightful and given very moving presentations, even though they have been full of the realities of dementia; their humanity and desire to make the world a better place for people living or caring for a person with dementia is evident and passionate. My dear husband spoke yesterday about his world of living with someone he loves with dementia, sharing his own insights and suffering; he is not by nature someone who can easily do this, and I felt very proud of him. Facing the truth about anything and everything in your life is hard work, but at home we can slip into our denial bubble more often. We do look forward to going home next weekend, where we can hang out in this bubble again for a while.
