Primary Progressive Aphasia

Reblogged from the National Aphasia Association: Understanding primary progressive aphasia (PPA)

PRIMARY PROGRESSIVE APHASIA is a rare neurological syndrome in which language capabilities become slowly and progressively impaired. This information sheet was prepared to help explain Primary Progressive Aphasia to the general public.

What is aphasia? Aphasia is an acquired disorder caused by brain damage which affects a person’s ability to communicate. The principal signs of aphasia are impairments in the ability to express oneself when speaking, trouble understanding speech, and difficulty with reading and writing. Aphasia is most often the result of stroke or head injury, but can also occur in other neurological disorders, such as brain tumor or Alzheimer’s disease. The effects of aphasia differ from person to person, and can sometimes benefit from speech therapy. Strategies to communicate non-verbally (without words) may also be helpful to the person with aphasia.

What is primary progressive aphasia? The syndrome of primary progressive aphasia has been defined by Mesulam and colleagues as a progressive disorder of language, with preservation of other mental functions and of activities of daily living, for at least two years. Most people with primary progressive aphasia maintain ability to take care of themselves, pursue hobbies, and, in some instances, remain employed. The problem is a disorder of language; and signs and symptoms of other clinical syndromes are not found through tests routinely used to determine the presence of other conditions.

Although primary progressive aphasia may take a number of forms, it commonly appears initially as a disorder of speaking (an articulatory problem), progressing to nearly total inability to speak in its most severe stage, while comprehension remains relatively preserved. A less common variety begins with impaired word finding and progressive deterioration of naming and comprehension, with relatively preserved articulation. However, other neurological disorders exist in which progressive deterioration of language is only one component of a broad, progressive decline of mental functions, including memory, attention, visuospatial skills, reasoning, and the carrying out of complex motor activities. These diseases, such as Alzheimer’s disease, Pick’s disease, and Creutzfeld-Jakob disease, should be excluded by appropriate neurologic examinations, when a person experiences progressive language decline.


Reblogged from GUARDIAN Fiduciary Services

Understanding Aphasia for National Aphasia Awareness Month

Posted on June 19, 2013
To honor National Aphasia Awareness month, we feel it is important to revisit the excerpt below from the original resolution that Senator Tim Johnson of South Dakota sponsored recognizing June as National Aphasia Awareness Month:

“Whereas people with Aphasia and their caregivers envision a world that recognizes the ‘silent’ disability of Aphasia and provides opportunity and fulfillment for people affected by Aphasia. Now, therefore, be it resolved, that the Senate:

• Supports efforts to increase awareness of aphasia  • Acknowledges that aphasia deserves more attention and study to find new solutions • Supports efforts to make the voices of people with aphasia heard • Encourages all people in the United States to observe National Aphasia Awareness Month”

We hope that this educational infographic captures the essence of this resolution and drives positive outcomes for all people living with Aphasia, and those who support them through advocacy, treatment, education and support.

Infographic - Aphasia

The only thing missing in this global conversation is YOUR voice... Thank you.

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