Where Did You Go? Well, I am still here…

WHERE- 4950 SQUARE 1Film, television and all things media is one of the strongest ways to get the word spread about an issue or an idea. Trending things on Twitter can vary from a celebrity to a new craze. This shows everyone’s talking about it, right? So why not have a trend that provokes awareness, understanding and community? Never mind which celebrity partnership has broken up, lets trend the things that matter; the health and well-being of people.

It has become apparent in the recent years that Dementia has become a growing issue for people. Many feel that it is just a disease for the older generation.


With the youngest recorded diagnosis now well below the age of thirty, it really can affect anyone at almost any point in their lives. Dementia needs understanding, knowledge and care surrounding it. Many do not understand and, therefore, become complacent about the condition. When they do come into contact with it, many simply do not know how to deal with it.

With massive cuts to Health Care in recent years, the money is just not there to be spent on Dementia care provision. This needs to change. Now.

So what does Dementia have to do with all things media, or even social networks or platforms such as Twitter and Kickstarter?

With 44 million people currently living with the condition, and that figure estimated to rise to 135 million, by 2050, it is a cause for concern. Connecting across continents and collaborating on a shared project, these professionals are working together to make a hard hitting short film on the subject of Lewy-body Dementia, entitled ‘Where Did You Go?’

Towards the end of last year, I agreed to work in partnership with Shared Syndicate (United Kingdom). Myself and other professionals are hoping to create a film that explores the depths of Dementia. Entitled ‘Where Did You Go?’ the film follows the life of character Jean Rose, who at just 49 years old, has younger on-set Lewy Body Dementia. Through the film you will experience and live her reality.

Whilst this short clip is about the very real tragedy and devastation people with dementia and their families can experience, the project as a whole is also about living well with dementia as well. But although the title suggests what many express, we are, always, still here. John Sandblom, a friend and colleague of mine from Dementia Alliance International says; “we are just changing in ways that you are not.” I say, we are always still here.

This short film will be accompanied by a documentary about Dementia as a whole –‘I Am Still Here’ and the projects #Shareyourstory campaign, with 50% of all profits from the film sales being used to set up a worldwide ‘living well with Dementia fund’.

Living with dementia is not, as you know if you are a regular reader here, all doom and gloom, and we need more films, YouTube clips, tweets and blogs in the media to express that very real FACT.

We must break down the myths of dementia, especially the one that we cannot live well with dementia.

Through the medium of film we can reach people on a global scale, and spread the awareness and understanding that Dementia deserves. We hope it sparks conversation, and connections, so that individuals living with the condition and their families will no longer feel isolated and alone. ‘Where Did You Go?’ could really change how we approach Dementia on a global scale. We are not only aiming to raise awareness about Dementia with this project.

With 50% of the profits that the film makes, we will create an international fund entitled ‘The Living Well with Dementia Fund’, that will allow people from around the world to apply for and receive Educational help and resources.This is the part of the project that sealed my involvement. I am, as my regular readers know, working hard to live well with dementia, and want others to know it is possible, not only for themselves if they have dementia, but for their family or patients.

Of course, this cannot happen without your help… This project will not and cannot happen unless we reach our funding goal by February 5th 2015, so it really is down to everyone out there! Every pledge and backer counts and will go directly towards our goal and project, and with Kickstarter if we do not reach our goal, we receive nothing. So the pressure is on!

Call To Action!

·         Watch and read our project material here: Kickstarter

·         Make a Kickstarter account and pledge to this project (every backer counts!)

·         Leave a comment on our Kickstarter page to support the project!

·         Share this with everyone you know (Conversations, Emails, hitting the [Share This Project] button and Social Media all helps)

Pledge a support contribution TODAY, and consider asking others to pledge too!

$5, $25, $105, $2500 … (It will take a little from a lot)

Click here to watch & PLEDGE 

(NOTE: Donations are displayed in British Pounds.)

Please note that no money will be taken out of your account from Kickstarter until the funding deadline in February.

For more updates about the project please follow Shared Syndicate on their Twitter @SharedSyndicate

By sharing and connecting, we can and will make a difference.

If Shared Syndicate reaches their goal, the Kickstarter Campaign funding will enable:

  • The production of “Where Did You Go?” a 15 minute dramatic short-film highlighting one woman’s challenges with Lewy Body Dementia.  The film will be submitted to major festivals creating a platform for needed conversation and dialogue about this different dementia and challenges surrounding individuals and families.
  • The production of an accompanying 1 hour documentary

“I Am Still Here” addressing the stigma of living with dementia.   Audiences will learn from the making of the film and interviews and personal stories from professionals, care givers, and individuals living with Lewy Body or other dementias.

This film and documentary will assist us all in raising global awareness about the effects of dementia and the needs of individuals and families.

The Living Well with Dementia Fund will provide scholarship resources, education and skill training for families and professionals.

One thought on “Where Did You Go? Well, I am still here…

  1. Pingback: Raising dementia awareness worldwide! | Alzheimer's Days Gone By

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