Yep, What the hell happened to my brain? is the title of my first book about dementia. Some will wonder if anything happened at all, considering I have managed to write a book, but that’s ok, they and most people don’t see my daily struggles, the laminated signs around the house, or the many other disAbility supports and strategies I use. Dementia is after all, usually until much closer to the end, a disease with mostly invisible disAbilities.
For those of you have asked, I don’t have a release date yet for the book, but discovered today it is already up on Amazon here and this is what it says about my book: Kate Swaffer was 49 years old when she was diagnosed with a rare form of young onset dementia. Here, she insightfully explores issues relating to that experience, such as giving up employment and driving, breaking the news to family, having a suddenly reduced social circle, stigma surrounding dementia and inadequacies in care and support. Kate also shares her experiences in dementia activism and advocacy, highlighting the important role of social media in combatting isolation post-diagnosis. Kate’s empowering words will challenge preconceptions on dementia, highlight the issues that impact individuals living with a dementia diagnosis, and act as a source of comfort for them and their loved ones. The book will also be of interest to dementia care professionals.
It also says, This title has not yet been released. You may pre-order it now and we will deliver it to you when it arrives.Dispatched from and sold by Amazon. Of course, I will advise of a release date as soon as I have one.
I’d have to say the emotional toll of writing this book has been significant, and that is on top of the huge physical effort of writing so much. My physical ailments like the parasthesia in my arms, is now constant in my right arm, almost to the point of an RSI injury, significantly limiting the strength and use of my arm. The emotional toll however, has been the most difficult, as living inside the denial bubble as we tend to do, has been impossible. I asked my dear husband this morning if he wanted to read the manuscript, and he said he’d prefer not to; we talked about it and said how we have both had to get out of the denial bubble, and seeing me out of it more, and struggling so much more due to over load and tiredness, is not pleasant for either of us. He also said, “no way, I’ll buy one, I don’t want any freebies!!!!” After my discussions and writings on there being big money in dementia, he is obviously rather wary… haha… Anyway, to say I am thrilled with it completed, and with the positive responses I have had so far, is an understatement, and although I am terrified of it finally being in print (!), it is also very exciting. Thank you for your support here, and on twitter and Facebook.