WHO webcast

CAPhM62WsAEu4QZ.jpg largeIt has been a very busy couple of days in Geneva, and I am thrilled to have put Dementia Alliance International onto the global stage, but more importantly, I feel as if we have three very important issues now on the global stage.

You can read a précis of the two days written by Dr Ian McDonald, Science Communicator at Alzheimer’s Australia here…

See the morning sessions from Day 2, which includes my presentation at about 32 minutes:

http://www.who.int/mediacentre/dementia-conference-live/2015/en/

One of the moderators on Day one suggested we all would have many issues important to bring to the meeting; the three of topics of significant importance to people with dementia I chose to discuss were the following;

  1. That we have human right to a more ethical pathway of care
  1. Being treated with the same human rights as everyone else, under the Disability Discrimination Acts and UN Convention on the Rights of Persons with Disabilities
  1. That research does not only focus on a cure, but on our pre and post-diagnostic care, and on pre and post vention including rehabilitation.

I will blog the transcript and power point slides of the presentation onto the DAI blog, with a link to it here as well as write a full report for our members on the DAI blog soon.

14 thoughts on “WHO webcast

  1. Pingback: Living Beyond Dementia™ can be difficult – Living Beyond Dementia™

  2. Kate, congratulations on your participation in the conference. I listened to part of your remarks and will listen to the full session next week when I have more time.

    I wonder if you might send me a soft copy of your remarks to the conference so that I may quote you in my blog and also possibly produce some quote posters for my website SheQuotes which is here: http://shequotes.com/

    I sometimes produce these posters with pictures as you will see if you go to the link, so if you have any images that would be appropriate (i.e. close-up “action” shots with “white space” to put the quotes in that would also be helpful). My email is: Susan@amazingwomenrock.com

    Congratulations and thanks again.

  3. Kate, congratulations on your participation at the conference. I have listened to part of your session and will listen to the rest next week when I have more time.

    I wonder if you might send me a soft copy of your remarks to the conference? I would like to quote you on my blog and it would just be much easier and faster to do so if I have the words. I would also like to do some quote posters to potentially post on my blog and/or on my she quotes website which is here: http://shequotes.com/

    • Thanks Susan. You can easily download the speech notes from the Dementia Alliance International website, or even cut and paste from the blog there. If you use any quotes, please let me know first, but perhaps I’ll email you instead of it having to happen here…

  4. ‘ ‘NOTHING ABOUT US WITHOUT ALL OF US’ LAUNCHED IN GENEVA

    Congratulations Kate on a brilliant presentation to this global conference and particularly for your listing of the UN Convention on the Rights of Persons with Disabilities (CRPD) as relevant to the protection of the basic rights of people living with dementia.

    The conference ended with the unanimous adoption by all the government and UN representatives of a joint NGO resolution which prioritised human rights and the involvement of people living with dementia in the development and roll-out of National Dementia Plans.

    That’s a good start but now its UP TO US to make it happen by holding our governments accountable for their commitments. The Convention has been doing that since it established the CRPD Committee in 2009. 17 of its 18 members are people with disabilities. Next time there’s an election, one of them should be a person living with dementia: talk to your government about it.

    People with dementia are covered by the definition of disability in Article1 but there has been hardly any mention of their needs at any level from the UN or from governments. Implementation for people with other other disabilities has been patchy; none of the 20 governments whose reports have been examined by the CRPD Committee of the UN High Commission on Human Rights has escaped criticism. (http://www.ohchr.org/EN/HRBodies/CRPD/Pages/CRPDIndex.aspx)..

    I’ve been working for this Convention as an academic, a UN consultant and as an NGO advocate for a long time. At one time people with intellectual disabilities had to insist on their right to be included but they are now fully included and respected for their contribution.

    Kate has set the scene for people living with dementia to be at the table when decisions are made which affect them and those close to them. It’s now up to the rest of us to follow through by making sure we’re included in the Convention so that our voices are included in holding governments to account for translating words to actions.

    Here’s a you-tube interview in which I try to sum up the potential of this Convention to make a real difference

      • Here’s the final Call for Action adopted by the Conference. Below are the sections that are most relevant to people living with dementia.

        These are fine words but work now has to begun to make sure that they are turned into ACTION.

        You mentioned the UN Convention on the Rights of Persons with Disabilities – see youtube above for a brief description of how it be used to hold governments to account for their promises.

        WHO FIRST MINISTERIAL CONFERENCE ON DEMENTIA March 16-17 2015 :CALL FOR ACTION

        The following overarching principles and approaches are integral to global efforts:
        • Empowering and engaging the full and active participation of people living with dementia, their caregivers and families, as well as overcoming stigma and discrimination;
        • Balancing prevention, risk reduction, care and cure so that whilst efforts are directed towards finding effective treatments and practices and risk reduction interventions, continuous improvements are made on care for people living with dementia and support for their caregivers;
        • Emphasising that policies, plans, programmes, interventions and actions are sensitive to the needs, expectations and human rights of people living with dementia and their caregivers;
        • Embracing the importance of universal health coverage and an equity-based approach in all aspects of dementia efforts, including facilitation of equitable access to health and social care for people living with dementia and their caregivers.

The only thing missing in this global conversation is YOUR voice... Thank you.

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