11 thoughts on “How it felt after a Dx of Dementia

  1. I didn’t want to watch it, I really didn’t, it has taken me a couple of days to work up the courage, not that I have any of the symptoms you describe, but I hear you telling me, I still remember where we were when you told me the diagnosis, it wasn’t that I didn’t believe you, it was just unbelievable. You have always been a truth teller.
    My great friend on a path that I can only walk beside you, your voice for the people is truly inspiring and amazing. Love you my dear friend.

  2. Amazing, great and inspirational work, portrays well how it feels initially being diagnosed with younger onset dementia. I am reading, listening, watching and learning so much from you while crying each time.
    God bless my dear. I wish to meet you one day in this life and be strong and able to speak up more like you.

    your video shared on twitter already 🙂
    Keep up the excellent work.
    I will pray for you. Pray for me please.

    Thank you so much.

  3. Hi Kate,
    As usual right on target. These things all sound very familiar to me. I have always relied heavily on your blog posts about living well with dementia; in fact they have been my guide for more than a year. I have periods when I feel more gloomy than other times; your cheerful voice has always been quite helpful. As you know, there are weekly (daily, hourly) ups and downs, but more than anyone you have always shown a rare skill for always being “up” and it is a great inspiration to me.

    This link goes to my blog. The period described in this post is about how I had a chance to work in creative ways and maybe even make a little difference in how the world views dementia care. I will always be grateful for this opportunity.

    https://hubaisms.com/2016/08/11/dementia-artistic-mm/

    Your great admirer, George

  4. Hi Kate, as usual right on target. These things all sound very familiar to me. I have always relied heavily on your blog posts about living well with dementia; in fact they have been my guide for more than a year. I have periods when I feel more gloomy than other times; your cheerful voice has always been quite helpful. As you know, there are weekly (daily, hourly) ups and downs, but more than anyone you have always shown a rare skill for always being “up” and it is a great inspiration to me. Your great admirer, George

    • Thanks George… I was trying to explain to someone yesterday about the ‘ups and downs’ of living with dementia, which we so rarely show in public. It is easy to dress up and ‘look and act’ normal for 30 minutes, not so easy behind the scenes. xox

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