Blogging helps me to capture moments and memories, and has become my personal history file, by way of words and stories embodying feelings and emotions. Blogging to capture my memories and thoughts has now become a significant tool in managing my response to dementia, and something I try to do often.
Speaking out through blogging, as a person with dementia, is also my way of striving to break down the barriers and stigma around dementia.
My blog has become the journal of my life, my thoughts and my activities. Other social media like facebook and twitter has become important too, as they offer other social connections and ways to connect in the world. All of them also have photographs, of people and events and activities, offering me yet another way to recall my world.
On the days I can’t remember a face when speaking on the phone, I go to one of these sites, as most people are now there with a photograph of themselves. Phones now have the ability to add profile pictures too, which is also helpful.
Many of mabilities are permanently damaged and my photographic memory is dead and buried. I read then I forget… I read then I forget… I read, I take notes, and then I forget… I blog, and it is always there.
Computers and blogging have become my best friends as they constantly command my attention, edit for me, and perhaps more importantly push my brain to work hard every time I connect with them.
Dementia can represent the end of dreaming, a long and unforgiving one way odyssey into obscurity, clouded in a thick and unforgiving fog.
For me, blogging has helped bring back the dreaming.
It inspires me to write more, creating a repertoire of my memories and personal history files, ensuring I leave some sort of record or legacy for my children to recall who I was and what I thought about. I feel humbled every time I receive feedback about something someone has read… something that also had meaning for them, or helped change their world in some small way.
Blogging encourages me to keep going, and empowers me to rise above dementia and stay inspired and alive and I am certain it helps with neuroplasticity and creates new pathways for my brain to continue functioning. If you want to have a voice, but can’t find a forum, maybe you too should think about setting up a ablog.
Footnote: this is a slightly edited version of a blog I wrote about 9 years ago.