It’s an Interesting time in dementia advocacy, and I’m currently witnessing a lot of justification or rationalisation that the last 2+ decades of advocacy have been worth it.
In part because of that, I have been reading lots of my old blogs, just to see what I have previously thought and said about things, and I am also interested how much my thoughts and opinions about some things have really changed, or on some topics or issues, how much more strongly I feel about some now.
In terms of the label of disability, it was good to be reminded how people like me, who were once able bodied (whatever that really means!?) but who now have ‘acquired disablities’ due to dementia, may feel, when they first hear this term applied to them.
Most tell me they see the word disability as another negative disempowering label.
As it’s day 17 of Dementia Awareness Month, I thought it might be useful to review dementia as a disability.
The World Health Organisation states dementia is a major cause of disability and dependence in older persons worldwide.
In 2011, I started to write about my experience of becoming disabled, and it has been interesting to me, how I initially rejected this term, including writing a bog called, Does the word disability increase disAbility?.
For some years now, I have really embraced the label of disAbility, as it has helped me fight for the rights of people with dementia! Clearly, a selfish pursuit…
Let’s all, long after Dementia Awareness Month, find ways to ensure we ACT on improving the lives of people with dementia.
New organisations, new foundations, new alliances or coalitions are not the answer. It’s time we all worked together.