Egos, money and power: these are the enemies we face. Not dementia.
I’m starting to believe (may have have always believed), these are the things that have stopped real change and progress, with things like reducing stigma, discrimination, loneliness, and the abuse and neglect many of us experience, in care homes and also in the community. Oh, and especially online!
The issues are complex, but are staring right at us, if we dare to look.
Organisations are invested in their own future, their staffing levels, and most of all influencing government and policy to keep their funding.
This does not necessarily equate to improving the lives of people with dmentia or their care parnters and families, and many report regularly that the major advocacy organisations around the world have done little to change their lives.
Individuals who become advocates are often less likely to say this, as they may have been swayed by this power, and the money and time now being spent on them, and their ‘inclusion.’
The other major factor holding back progress, which is likely also related to egos, money and power, is the unwillingness of everyone to truly collaborate, and cooperate, and work together. I invited the CEO of a major peak body in the UK to collaborate with me almost 12 months ago on a project we desperately need collective action on, and the offer was declined, as it was currently ‘not one of their projects or priorities’.
So, when will it be the right time to work together, to ensure tangible change for people living with dementia and our families?