Today is Day 28 of my National Poem Writing Month challenge, and I have managed to write a haiku each day, often using an image to spark my imagination. Todays poem is called Alone and has me thinking more about loneliness, dementia and dying. I’m not so sure the loneliness is any worse than when you are facing…
My ability to continue to write a blog every day is deteriorating, and so it seemed a sensible idea to set out a plan to ensure I can continue blogging in some way because the value of doing it is significant. As of today, Saturdays are to become my poetry day and I have written…
Treating symptoms in the early stages of dementia, as the gateway to supporting disabilities, not managing them in ways that restrict and hinder, and managing emotional changes with counselling and positive engagement, rather than treating the symptoms with drugs, have become paramount to my well being and perceived longevity. If the symptoms of dementia were…
GLEN Campbell’s Alzheimer’s disease has progressed too far to allow him to continue touring. (news.com.au) Instead, the country music legend was expected to spend his 77th birthday on Monday in Washington as an advocate for Alzheimer’s research. The trip included a fundraising dinner for the Alzheimer’s Association and a visit to Capitol Hill, where he’ll…
The Best Australian Blogs 2013 Competition had a staggering 1122 blogs enter. Finalists were announced yesterday, and Creating life with words: Love, life and loss was not one of them. This is the notice we all received yesterday: “Thank you for entering this year’s Best Australian Blogs Competition. Altogether, 1122 bloggers entered. It has been an…
lib·er·a·tion (l b -r sh n). n. 1. The act of liberating or the state of being liberated. 2. The act or process of trying to achieve equal rights and status. My computer and internet access are more important to me than just staying connected. This connectedness helps to make up for the lost friendships, the loss…
Thanks to this article, I have an easy blog today as we arrived home at 7am, and there is not much left in the think tank! We learnt of this award at the ADI conference in Taipei, and it is in many ways mostly thanks to Glenn Rees, the CEO of Alzheimer’s Australia, Ita Buttrose, the President, and their…
The Memory Walk yesterday hosted by Alzheimer’s Taiwan was nothing short of spectacular. This picture is of some of the Aussies there, including our CEO, Glenn Rees, and Maree McCabe, the CEO of Alzheimer’s Victoria. There were over 4000 people from many countries around the world. One chap representing Hungary, two delightful girls representing Prague, and…
It is Day 20 of my National Poetry Writing Month challenge, and this is the haiku I wrote for today; I am who I am. It is the final in a series of three. I’ve been trying to have some sort of social commentary or dialogue throughout the poems, or at least have a bit…
I really want a Like button on the comments my readers make on my blog posts. These days I simply do not have the mental energy to respond to every single comment, which was once a goal of mine. But there are so many comments I like, I would like to hit the Like button! And in…
The increasing load of living with a person with the symptoms of dementia on the BUB (back up brain or carer). The experience of travelling is becoming more difficult, especially for my BUB. He remains on red-alert as my distress levels and confusion go up due to the crowds, the noise and the lack of my…
We’ve travelled all day from Kuala Lumpur to Taipei. The flight was just over 4 hours, but we were up at 5am as the traffic to the airport was already frantic by 6.30am! Then waiting around until departure at 9.30. There are 3 million cars owned in KL, and around 1-1.5 million drive into the…
We’re in Kuala Lumpur, rested and enjoying two days of recreation and inspiration. It is a busy city, and the Petronas twin towers eerily remind me of the twin towers at The World Trade Centre, but more beautiful. The Petronas Towers in KL were the tallest in the world from 1998 to 2004, and the Burj Khalifa…
Watch this video, Early-Onset Alzheimer’s: One Couple’s Story brought to my attention by Jami L.Hede, M.S., CCC/SLP. Thanks again Jami. It has really helped me out too, as the old brain is not firing too well today either, and I couldn’t even work out to re-blog! She made a very important point about yet another disaster waiting…
I love this picture, and the name of the food stall… these boys are hardly fat!! We’re in Adelaide airport waiting for our flight to Kuala Lumpur where we have two whole days to enjoy the sights. Mostly though, I’m really looking forward to the food!! In fact I’ve been drooling ever since we booked…
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