Dementia and me

Day 20: Dementia Awareness Month 2014 Dementia and me What the hell happened to my brain diagnosed with dementia when I was much too young my children still at school a deadly terminal disease effecting memory, thinking, perception, judgment, language and speech But worse than that, effecting my life, family, friendships, my sense of self,…

Updated DAI Media Release

Day 19: Dementia Awareness Month 2014 I have just realised I posted a media release as a new page, rather than a blog earlier this month! Oh well, at least it was here, although not properly highlighted to everyone following my blog, sorry. It was to remind you of the Master Classes and our online…

Staying meaningfully engaged

Day 18: Dementia Awareness Month 2014 Alzheimer’s Australia have been highlighting stories every day as part of their Dementia Awareness Month program, and this week, this image and quote was featured. Dementia friendly communities is the theme in Australia this year, and as such, the focus has been on hearing from people with dementia from…

Dementia Friendly Communities in Kiama

Day 17: Dementia Awareness Month 2014 It was a pleasure and honour to be presenting before Steve Milton yesterday in Kiama, and along side a woman called Veda Meneghetti who also lives with younger onset dementia. I have added the  presentation I gave below, although you will not get any sense of the fun Veda…

Master Class 2: My conversation with my doctor

Day 16: Dementia Awareness Month 2014 Please watch the DAI Master Class 2 My Conversation with my doctor run by Dementia Alliance International last week, as part of our Dementia Awareness Month 2014 activities. Retired doctors Jennifer Bute (UK) and David Kramer (USA) and co-founder of DAI John Sandblom facilitated this class, and it is…

Why speak out?

Day 15: Dementia Awareness Month 2014 I continue to speak out because currently there are not enough people with dementia being asked to speak at or attend events, or being actively involved in things about them. Perhaps by being a role model, and challenging the status quo, it will bring about change. During Dementia Awareness…

Day 14: Dementia Awareness Month 2014

Please watch the YouTube clip and see the links (below) to the new Alzheimer’s Australia CSAs which have been placed on the Alzheimer’s YouTube site. These are the ‘national’ version of the ads which were launched on Sunday 7 September (on Network 7). The NSW version of the ads are being launched today and only…

Remembering Star

Today I am not writing at all about dementia, because it is the first anniversary since my beautiful Russian Blue Cat Star died of cancer. It is still difficult to accept she is not here, and although Boris has definitely stepped up to the plate in terms of affection and love, and his devotion to…

Behaviour Management vs Better Education

Day 12: Dementia Awareness Month 2014 I presented at a forum in Melbourne yesterday about the needs of people with dementia, and what is either missing or ways to improve service delivery and care in the health care sector. Sadly, although our government has introduced Consumer Directed Care, and service providers have had to embraced,…

Day 10: Dementia Awareness Month Language guidelines 2014

As part of Dementia Awareness Month, Alzheimer’s Australia have launched a tool kit to support their work on dementia friendly communities. One of the documents supporting this is the updated Alzheimers Australia language guidelines 2014. I am highlighting some of them here as well, and will add the comprehensive guidelines when they are available.. WHEN…

Day 9: Dementia Awareness Month A dementia-friendly WA

Former Perth principal Glenda Parkin works to increase ‘dementia-friendly’ urban design By Claire Moodie By Claire Moodie. Updated yesterday at 1:39pm Most cities are keen to sell themselves as “family-friendly”, but convincing them to become “dementia-friendly” is a much bigger challenge. A former Perth school principal is backing the push for Perth to take the…

Day 6: DAM – Imagine life without words

Imagine life without words – it could happen to you – Aphasia Published on Sep 1, 2014 by Understanding Aphasia Aphasia is a complex condition which varies in every individual. Some have difficulty understanding speech, some find it hard to talk, while others have difficulty reading and writing. In cases of severe aphasia all these…