Yes, it is already Day 5 of Dementia Awareness Month, and as the theme this year in Australia is focused on Dementia Friendly Communities, I thought I would post the information about the event taking in place in Adelaide, and the information and links to all of the events in Australia. It is especially important…
Today Health Consumers Alliance SA held an event called Planning Ahead 2014 to launch the new Advanced Care Directives in South Australia, and as part of Dementia Awareness Month 2014, I am writing about it today. I was one of the speakers talking about the importance of planning ahead, and as requested, I am spreading…
As part of my personal campaign to raise awareness of dementia, and break down the myths, and reduce the stigma, discrimination and stigma, I have spent this morning presenting at the 9th Conference of The Australian College of Nurse Practitioners, at the SMC Conference & Function Centre in Sydney. Professor Brian Draper from Sydney University…
Earlier today Alzheimer’s Australia sent out a Media Release_Dementia Awareness Month 2014 outlining some new resources, a link to the video I published on my blog earlier, and an announcement about me. It is a very exciting time to live in, especially when some of my personal dreams are actually coming true. I often persist…
THE UNSPOKEN IMPACT OF DEMENTIA – HELP US SPREAD THE WORD! Alzheimer’s Australia has a vision to create a dementia-friendly nation, a place where people living with dementia are supported to live a high quality of life with meaning, purpose and value. We want the world to end dementia stigma. This video will bring us…
Dementia Alliance International is running a series of Master Classes and nother online free events throughout Dementia Awareness Month, specifically for people with dementia, by people with dementia. Whilst others may attend, the focus is on teaching others to live well with dementia. I hope you will join us in this new and exciting time…
Today I am in Sydney attending a research workshop about the impact on the children of people diagnosed with younger onset dementia, and my youngest son is here with me as he and one of Christine Bryden’s daughters have been asked to present. They are both moderately terrified, but I know they will be brilliant;…
“First times” are hard work, especially when you are young or if you have low self esteem. Depending on the type of dementia a person has, as it progresses many daily activities become first time. Robyn Moore taught me about the joy of “first times” for people with dementia, and every time her mother who had advanced dementia asked…
Spring is in the air There is sunshine everywhere Peeping through the clouds Tossing back the shrouds Of winter gloom All darkness and doom Spring is in the air There is sunshine everywhere Laughter instead of tears Joy instead of fears Bringing back the smile On almost everyone’s dial!
One blog that has been brewing in the back of my blogosphere for a while is day care respite for people with younger onset dementia, a topic close to my heart. Why day care or respite at all, when in fact, many of us could have been supported like any other disAbled person to stay…
After 40 years, the Class of ’74 Reunion took place on Sunday 10th August 2014 at the Saracen’s Head hotel in Adelaide. To say it was enjoyable is a very big understatement! Many from this class had not seen each other since 1994, and at the 20th reunion held at Cleve in July 1994, many…
I am re-blogging the blog I published yesterday for Dementia Alliance International, called Dementia in the media.It began with this: “As the editor of an international advocacy and support group, of by and for people with dementia, I read or am referred to many articles in the media about dementia. Most of them require a…
Seeing you lying there Through a tiny window Covered in a pure white shroud Wishing, hoping, praying That it was not really you. Wanting to be close To kiss your lips To hold you in my arms And feel your warmth again Why did you choose to die? To scream, to yell, to cry Was…
I decided today to re-blog an article written earlier this week about Australia’s very own “Clown Doctor,” Dr Peter Spitzer who I had the honour to meet and participate in a workshop run by him in Adelaide. He passed away this week due to cancer, the same week as the remarkable Robin Williams also died,…
As a person living with a diagnosis of younger onset dementia, the voice of people with dementia is a particularly ‘hot topic’ for me. I have lived well with dementia so far, and although deteriorating slowly, continue to live well, with many and varied disability supports in place. When I first started attending events including conferences…
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