Day 20: Dementia Awareness Month 2014
Dementia and me
What the hell happened to my brain
diagnosed with dementia when I was much too young
my children still at school
a deadly terminal disease effecting
memory, thinking, perception, judgment, language and speech
But worse than that, effecting my
life, family, friendships, my sense of self, my identity
and a bucket load of guilt
truckloads of stigma discrimination and isolation
loss of dreams, and grief
sadness, disbelief, lost employment
And yet a new purpose of advocacy and activism
to bring about change
to stop the blatant abuse of the most basic of human rights
of people diagnosed with dementia, young or old
fewer old friends, new global friendships
The role of educator
teaching global lessons to academics and carers
hoping for and seeking change
searching for new ways for professionals
to discover we deserve the same as others with illness
not involuntary restraint
Eventually locked away in secure memory units
given drugs to make us compliant or physically restrained
the justification it’s for our safety
helping aged care and hospitals comply with their duty of care
avoiding insurance claims
Worse than being locked in prison
the person with dementia
has not broken the law or done anything wrong
they are not criminals
they have a degenerative cognitive terminal disease
needing love and support
Support to remain engaged with pre-diagnosis activities
counselling to stay motivated
a disAbility access plan and assisted technologies
disAbility equipment, mentoring
positive psychology for our sense of well being
and to be treated with dignity as whole human beings
Above all else.
Thanks Kate and tell me where did you find the image of the tree-head losing leaves or did you create it? Can I share it on my fb page?
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I found it on Google images… feel free to use it.
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Thanks Kate, for sharing your wisdom with us….
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It is wponderful we can all share our individual wisdom… thanks for sharing yours too.
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You are a great educator Kate, thank you
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Thanks for reading…
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That’ll do nicely. Good job Kate.
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Thanks Steve…
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Nice job on this–very succinct.
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EXCELLENT! Thank you Kate! 😀
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Glad you like it Truthfulkindness, and it was great to actually ‘meet’ you online the other day!
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