I’m in pain today and not functioning or paddling as well as usual so am posting this link to an article about friends of ours in Scotland. It is a very interesting read, and it still horrifies me to think pain has been ignored for so long in the care of people with dementia. How dementia…
Published yesterday in DPS News, the Honourable Ms Kelly Vincent MLC, instructs on the use of language and improving communication, with tips and advice from the disAbility sector. It is perfectly aligned with my thoughts on this topic. This C-word campaign is also about person centred care – and respectful communication, and about the rights of people in…
In Sundays re-blog of Tweet by tweet: A father shares his grief as son dies the father of the dying son said of his experience during this time with social media; “It was overwhelming, heartwarming, comforting…” I too have been overwhelmed and comforted by the heart-warming friendship and support offered on social media. Without it, many days, I would…
I’ve had this comic strip on my fridge for years… however it was not always one that my two boys laughed at it!! I’m sure those of you with teenagers, or who have had them, will relate to this one…
Ok, I’ve never really believed in Monday-itis… but today I’m thinking about going back to bed! I really don’t feel up to dealing with the day, and in fact I suspect I had Monday-itis every single day last week! Boris my beautiful Russian Blue cat loves these moments or days, as it means if the weather permits, I go and…
Tweet by tweet: A father shares his grief as son dies By Molly Hayes Hamilton Spectator Feb 14, 2014 Three days before Christmas, an Ottawa father received a horrifying call. Francis Moran’s son, Christopher — Topher, they called him — had been hit by a car in Cambridge. The 20-year-old, who was studying architecture at the…
Geoffrey Gurrumul Yunupingu Has crept into my soul Blessed are we for his beautiful voice More blessed am I to have hearing His blindness there for all to see Not stopping him living a good life Perhaps inspiring him to be More inspired than others It was my very great fortune To have witnessed him…
I am currently wrestling with a deep sense of loneliness. In my search for wisdom, I have just re-read a Wakley Prize Essay, Dr Ishani Kar-Purkayastha’s moving essay An epidemic of loneliness and it was a timely reminder of the problems most recalcitrant to our research based and outcome-driven health care providers. Loneliness involves both social and emotional components…
So can I blame it all on them? I’m not sure what my friends without kids are going to do!!
Why should we need empower ourselves, or help to empower others to speak up? Why don’t more people with dementia speak up? And why do they need to? From the perspective of empowering people in minority or marginalised groups, empowerment needs strong leadership, vision, passion, a ‘never-give-up’ attitude, and a significant strength of character to take the ‘shit’ dished…
It seems my experience is not unique… during dinner last night with friends from the UK, one who was diagnosed with younger onset dementia in 2010, mentioned he and his wife were booked to go on a five week holiday to Australia, and during the same appointment when he was diagnosed, he was told to…
Diagnosed with dementia So much ‘suffering’ Sometimes my darling husband sits Holding his head in his hands Sad and tearful Watching the changes in his wife Caused by the symptoms of dementia And as I’m becoming less aware Increasingly less insightful Less frustrated Perhaps not ‘suffering’ at all My beloved husband Sits on the sidelines Watching my abilities slowly…
Thomas Cochran Though I’m not sure if he’s Found me through twitter Started following my blog He has his own blog Called Covered in Beer And this one titled America’s Knitting Underbelly With the picture of this cat Rather completely sucked me in And so it was simple The poetry blitz came into play I had to write…
The case of the stolen Mango Not even heard of by many Aussies Perhaps a prank to highlight it It even caught the attention Of dear Shibley My #nolongeranimaginaryfriend Who writes and blogs prolifically And said he wrote the Mango blog for me Though I’m not sure why He tweets @legalaware And whilst it has not been good for some We…
She’s a little bit cheeky Is Maureen Shiells @MMShiells As I’ve snuck in this poem Hoping desperately I won’t upset my newer followers She is just a little bit more than Interested in dementia Keen about health and well being She loves life It’s a bit worrying though She said a blog would have to wait Until…
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