Visiting Hesse Rural Health at Winchelsea

This week I visited Winchelsea and presented to the staff at the Hesse Rural Health service, and also at their AGM on my personal experience of living well with younger onset dementia, and about the advocacy work I am doing globally and in Australia. I talked about how I believe I am living well with dementia…

Parliamentary Friends of Dementia

As part of Dementia Awareness Month 2014, Alzheimer’s Australia hosted Parliamentary Friends of Dementia in Canberra on Tuesday 23rd September. Along with our new President, Mr Graeme Samuel, our international guest speaker Steve Milton from the UK, I presented on the issues facing consumers that that I feel most need addressing. It was an event…

Your Brain Matters

Day 30: Dementia Awareness Month 2014 I thought I’d end this very special Dementia Awareness Month by highlighting the Alzheimer’s Australia ‘Your Brain Matters” website and messages. This information and links are from the Alzheimer’s Australia website, and everyone should consider the messages. Our health is important, and in the same way as heart heath…

Dementia Daily: Leo White

Day 29: Dementia Awareness Month 2014 Leo White was 60 years old when he received a diagnosis of younger onset dementia. Prior to this diagnosis he was an organisational development consultant and executive coach. Leo has become an advocate for people living with dementia with a goal to ensure that all people with dementia receive…

Children of YOD: the invisible carers

Day 23: Dementia Awareness Month 2014 Media Release, 3 September 2014 Diagnosis of younger onset dementia has life changing impact on families Dementia is not something you associate with young people yet it is estimated that there are more than 24,400 Australians living with younger onset dementia. A diagnosis of younger onset dementia is not…

Day 14: Dementia Awareness Month 2014

Please watch the YouTube clip and see the links (below) to the new Alzheimer’s Australia CSAs which have been placed on the Alzheimer’s YouTube site. These are the ‘national’ version of the ads which were launched on Sunday 7 September (on Network 7). The NSW version of the ads are being launched today and only…

Day 10: Dementia Awareness Month Language guidelines 2014

As part of Dementia Awareness Month, Alzheimer’s Australia have launched a tool kit to support their work on dementia friendly communities. One of the documents supporting this is the updated Alzheimers Australia language guidelines 2014. I am highlighting some of them here as well, and will add the comprehensive guidelines when they are available.. WHEN…

Day 5: Dementia Awareness Month 2014

Yes, it is already Day 5 of Dementia Awareness Month, and as the theme this year in Australia is focused on Dementia Friendly Communities, I thought I would post the information about the event taking in place in Adelaide, and the information and links to all of the events in Australia. It is especially important…

Media Release Dementia Awareness Month 2014

  Earlier today Alzheimer’s Australia sent out a Media Release_Dementia Awareness Month 2014 outlining some new resources, a link to the video I published on my blog earlier, and an announcement about me. It is a very exciting time to live in, especially when some of  my personal dreams are actually coming true. I often persist…

Survey for people diagnosed with dementia

A trumpet call for ACTION to all Australians LIVING WITH A DIAGNOSIS OF DEMENTIA… Alzheimer’s Australia is currently conducting a survey about the experiences of people living with dementia. This survey will be used to help inform Alzheimer’s Australia work to create dementia-friendly communities across Australia. We are asking people living with a diagnosis of…

New national online resource to promote advance care planning

Media release Advance care planning (ACP) is the process of a person thinking about and communicating to others their values and wishes about possible future care at a time when they still have capacity. ACP is relevant for everyone in the community, but especially for people with chronic health conditions or at risk of losing…

Calling for support…

There are a couple of links below for which I ask for your support. The first is a survey aiming to support a more inclusive voice of people with dementia at ADI2015, being held in Perth Western Australia. The phrase ‘nothing about us without us’ is still bantered globally, and until now the voices of people with…

Consumer voices needed

ALZHEIMER’S AUSTRALIA NATIONAL CONSUMER ADVISORY GROUPS ON DEMENTIA LOOKING FOR NEW MEMBERS Do you have dementia, or do you care for someone with dementia? Are you interested in having a say about the needs of people with dementia in Australia? Alzheimer’s Australia has a number of national consumer advisory groups that are currently looking for…

NEWS: First Dementia Friendly town in Australia

I’ve been promoting the idea of dementia friendly towns and communities in Australia since meeting Sabine Henry at ADI London in 2012, the woman behind the project in Belgium. Belgium at that time had 25 dementia friendly cities, and the project had been recognised by the World Health Organisation. Alzheimer’s Australia is working hard on this at…